by Nakita | May 9, 2026 | Blog
I live with Systemic Lupus Erythematosus (SLE), otherwise known as lupus. While it has changed my life in many ways, most people would never know it just by looking at me, and that is just the complicated reality of living with an invisible illness. “But you don’t...
by Nakita | Apr 30, 2026 | Blog
Within the last seven years, since receiving the lupus diagnosis, I’ve had to relearn, reinvent and re-love myself. I’ve researched and studied, educating myself about lupus and linked illnesses, in a way that I never did for my university degree. Being chronically...
by Nakita | Mar 27, 2026 | Blog
Article by Debbie Kinsey, Health Information, Policy, & Research Manager SLEuro is a conference for researchers and healthcare professionals across Europe to come together and share the latest research, treatment, and support for people with lupus. Although...
by Nakita | Mar 4, 2026 | Research Opportunities
The ADAPT TrialA team of researchers, patients and clinicians are looking at whether Pilates or Tai Chi online group classes can reduce fatigue and improve quality of life. Location: Online Deadline: Recruitment closes when the study is full. Spaces are limited, so...
by Nakita | Feb 28, 2026 | Latest News
NICE publishes Quality Standard for rare disease NICE has published a Quality Standard for Rare Disease which sets out what high-quality sustainable care, treatment, and management should look like for rare diseases. We hope that this will help improve services, care,...
by Nakita | Feb 7, 2026 | Research Opportunities
The General Pharmaceutical Council (GPhC) The General Pharmaceutical Council (GPhC) makes sure pharmacy is safe and effective for patients and the public. They are inviting patients, carers, and members of the public to share their views on pharmacy services across...
by Nakita | Feb 7, 2026 | Research Opportunities
IMID BioResource Be part of the Immune Mediated Inflammatory Diseases (IMID) BioResource! It’s a research tissue bank of 18,000 individuals with immune-mediated diseases participating in health research. Currently, however, the patient population is not accurately...
by Nakita | Jan 22, 2026 | Latest News
NICE approves obinutuzumab to treat lupus nephritis in England and Wales NICE have recommended that a new treatment, obinutuzumab, can be used in combination with mycophenolate mofetil (MMF) to treat some patients with lupus nephritis in the NHS in England and Wales. ...
by Nakita | Jan 20, 2026 | Blog
Article by Amber S. Today, Monday 20th January 2026, is the International Day of Acceptance – a day dedicated to embracing life as it is, with all its challenges and changes. For those of us living with a chronic illness, acceptance isn’t just a word. It’s a daily...
by Nakita | Nov 21, 2025 | Latest News
Stay Protected This Winter: Flu, COVID-19, and RSV Vaccines During the colder months, viruses like flu, COVID-19, and respiratory syncytial virus (RSV) circulate more widely. For people with lupus, especially those taking immunosuppressive medicines, these infections...
