by Nakita | May 22, 2026 | Latest News
People living with immune-mediated inflammatory diseases (IMIDs), including lupus, in Scotland face persistent challenges in accessing timely diagnosis, equitable care, and the support needed to manage lifelong, complex conditions. The Scottish Report, led by the...
by Nakita | May 21, 2026 | Feedback
Lupus and Pregnancy Research Lead researcher: Dr George Woodward Funded by: Lupus UK alongside the UCLH NIHR Biomedical Research Centre Research overview: Last year researchers were looking for people to help shape research on lupus and pregnancy. A team from...
by Nakita | May 21, 2026 | Feedback
Co-Development of a Person-Centred Physical Activity Intervention for People with Lupus (PPAI-LUPUS) Feedback Lead applicant: Dr Tiago Peçanha – Manchester Metropolitan University Funded by: Health Innovation Manchester – MAHSC Grant Project Overview: This...
by Nakita | May 21, 2026 | Research Opportunities
BILAG Biologics Register Are you starting treatment with a biologic, biosimilar or other new therapy for your lupus? You could be eligible to join the BILAG Biologics Register (BR) and help them collect important data about the safety and effectiveness of different...
by Nakita | May 9, 2026 | Blog
People living with lupus face daily challenges depending on the severity of their flares and, along with other contributing factors, in my experience, most “good” days, need to be planned in advance. Spontaneity is a rare and wonderful thing, something most people...
by Nakita | May 9, 2026 | Blog
I live with Systemic Lupus Erythematosus (SLE), otherwise known as lupus. While it has changed my life in many ways, most people would never know it just by looking at me, and that is just the complicated reality of living with an invisible illness. “But you don’t...
by Nakita | Apr 30, 2026 | Blog
Within the last seven years, since receiving the lupus diagnosis, I’ve had to relearn, reinvent and re-love myself. I’ve researched and studied, educating myself about lupus and linked illnesses, in a way that I never did for my university degree. Being chronically...
by Nakita | Mar 27, 2026 | Blog
Article by Debbie Kinsey, Health Information, Policy, & Research Manager SLEuro is a conference for researchers and healthcare professionals across Europe to come together and share the latest research, treatment, and support for people with lupus. Although...
by Nakita | Feb 28, 2026 | Latest News
NICE publishes Quality Standard for rare disease NICE has published a Quality Standard for Rare Disease which sets out what high-quality sustainable care, treatment, and management should look like for rare diseases. We hope that this will help improve services, care,...
by Nakita | Feb 7, 2026 | Research Opportunities
The General Pharmaceutical Council (GPhC) The General Pharmaceutical Council (GPhC) makes sure pharmacy is safe and effective for patients and the public. They are inviting patients, carers, and members of the public to share their views on pharmacy services across...
