Take Part in Research!

Take part in research!

There are lots of ways to get involved in research. This could include surveys, focus groups, advisory panels, or clinical trials. You could also review study documents (like consent forms or information sheets) or help shape research questions. By taking part, you can help researchers understand day-to-day life with lupus and design better studies. This can lead to improved care and quality of life for people affected.

The new Lupus UK Research Network

We are developing a UK-wide network so people affected by lupus can get involved in research. More information coming soon.  If you have any questions, contact [email protected]

Current opportunities:

Below is a list of some of the research opportunities currently available – click on each one to find out more. This includes what’s involved and how to take part. For questions about a specific study, please contact the study team using the details in the listing. We may add or remove listings over time as studies open and close. Each study is run independently by the research team (not by Lupus UK) unless stated otherwise.

A&E and Pain Flare-Ups

[email protected]

Deadline: 15th August 2026

Developing a new measure for medical dismissal 

[email protected] 

Deadline: Monday 31st August

Withdrawing Immunosuppression in Patients with Lupus Nephritis in Remission: A Patient Perspective

[email protected]
[email protected]

Deadline: Express interest by 30th September

Genetic Risk of Hydroxychloroquine Retinopathy

[email protected]

Deadline: 1st January 2027

BILAG Biologics Register 

[email protected] 

Deadline – Ongoing

GPhC Public Panel & Voice Forum
The General Pharmaceutical Council

[email protected]

Deadline – Open

IMID BioResource 
National Institute for Health and Care Research (NIHR)

[email protected]

Deadline: 31st March 2029

NIHR Be Part of Research: You can also search for research on the “NIHR Be Part of Research” website. Sign up and choose the health conditions and locations you are interested in. Explore the Be Part of Research Service
Speak to your healthcare team: Your doctor, nurse and other healthcare professionals may be aware of relevant research. You can ask them about this in your appointments.
Research Feedback:

Lupus and Pregnancy Research

Lead researcher: Dr George Woodward

Person-Centred Physical Activity Intervention for People with Lupus

Lead applicant: Dr Tiago Peçanha – Manchester Metropolitan University 

What is PPIE?

PPIE is when research is done with people affected by lupus, not to them. It helps research focus on what matters and reflect a wider range of experiences.

Learn more about PPIE

If you need help using this page, contact us at: [email protected]

Tell us what you think. If any information was unclear, or if you have ideas for how we can improve research support at Lupus UK, share your thoughts  here.