Take Part in Research!
Take part in research!
There are lots of ways to get involved in research. This could include surveys, focus groups, advisory panels, or clinical trials. You could also review study documents (like consent forms or information sheets) or help shape research questions. By taking part, you can help researchers understand day-to-day life with lupus and design better studies. This can lead to improved care and quality of life for people affected.
The new Lupus UK Research Network
We are developing a UK-wide network so people affected by lupus can get involved in research. More information coming soon. If you have any questions, contact [email protected]
Current opportunities:
Below is a list of some of the research opportunities currently available – click on each one to find out more. This includes what’s involved and how to take part. For questions about a specific study, please contact the study team using the details in the listing. We may add or remove listings over time as studies open and close. Each study is run independently by the research team (not by Lupus UK) unless stated otherwise.
Recruitment Video Review for New Lupus STRATIFY Trial
Deadline: Provide comments by Friday 25th September
Share your experience of Lupus UK support for Lupus Awareness Month
Deadline: Monday 28th September
Information Sheet Review for the SLE-DINE Trial
Deadline: Wednesday 30th September
Share Your Experience: APPG on Black Health CVD Call for Evidence
Deadline: Wednesday 30th September
Withdrawing Immunosuppression in Patients with Lupus Nephritis in Remission: A Patient Perspective
Deadline: Express interest by 30th September
Genetic Risk of Hydroxychloroquine Retinopathy
Deadline: 1st January 2027
BILAG Biologics Register
Deadline – Ongoing
GPhC Public Panel & Voice Forum
The General Pharmaceutical Council
Deadline – Open
IMID BioResource
National Institute for Health and Care Research (NIHR)
Deadline: 31st March 2029
Lupus and Pregnancy Research
Lead researcher: Dr George Woodward
Person-Centred Physical Activity Intervention for People with Lupus
Lead applicant: Dr Tiago Peçanha – Manchester Metropolitan University
PPIE is when research is done with people affected by lupus, not to them. It helps research focus on what matters and reflect a wider range of experiences.
Tell us what you think. If any information was unclear, or if you have ideas for how we can improve research support at Lupus UK, share your thoughts here.