Resources and Information for Young People and Families

We have a range of information and resources available for young people and families impacted by lupus. You can download these resources below or contact us for a physical copy free of charge. 

Transition from Paediatrics to Adult Services

Becoming a young adult can be a time with many changes and opportunities, which can be exciting in some ways and challenging in others. As you become a young adult, the children’s hospital may no longer be the best place for you to have your treatment. This interactive booklet is designed to better prepare young people for the process of transitioning to adult services from paediatrics.

Education

If you have been diagnosed with lupus, it could be helpful to tell your school, college, or university about your condition. It is possible to receive accommodations if you need them, such as extra time in exams. Without them knowing, it can be hard for them to help you. We have created some resources below which you may find useful.

For additional support check out RAilSE, a charity improving school life and education for young people with invisible illnesses. 

Attending Medical Appointments During School

Reasonable
Adjustments

How to explain lupus
to others

Symptoms

Want to learn more about the symptoms of lupus and how it may impact day to day life of somebody living with lupus? Check out our 9-part symptom series, featuring our lupus youth community. 

UCLH Centre of Adolescent Rheumatology

UCLH have a website for their Centre of Adolescent Rheumatology. The website features loads of videos of interviews with lupus and arthritis patients, talking about their experiences. It also includes a wide variety of other information including how to get involved in research studies. You can take a look at it by clicking on the button below.
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