by Nakita | Oct 13, 2026 | Research Opportunities
Researchers are not asking people to take part in the AIM study yet. They would instead love your feedback on how to find and approach people who might be suitable to take part in future, and how samples and health information should be used. Express Interest What is...
by Nakita | Oct 13, 2026 | Research Opportunities
A research team from the University of Nottingham want to understand the experiences of people who have an autoimmune disease and have tried a ketogenic, carnivore or other very-low carb diet. This includes how people implement these diets, and if they report changes...
by Nakita | Oct 13, 2026 | Latest News
Lupus UK are really pleased than the SMC have decided that a new treatment, obinutuzumab, can be used to treat some patients with lupus nephritis in the NHS in Scotland. We hope that having another treatment option will help more people affected by lupus nephritis to...
by Nakita | Sep 25, 2026 | Blog
Government consultations are an opportunity for organisations and the public to share evidence, experiences and recommendations before decisions are made. For Lupus UK, they are an important way to ensure that the experiences of people living with lupus are included...
by Nakita | Sep 15, 2026 | Research Opportunities
Lupus Awareness Month is our annual campaign to raise understanding of lupus and of the support available. This year we would like to share real experiences of that support, so more people know what is there and how to reach it. We are looking for short testimonials...
by Nakita | Sep 3, 2026 | Latest News
This article includes information about three people dying in clinical trial for CAR-T. We understand this may be difficult for some people to read about, and encourage you to reach out for support if you need it. You can find links to places to find support and...
by Nakita | Aug 26, 2026 | Blog
Poetry can be a powerful way to express feelings and experiences that may be difficult to put into words. Bethany has written a poem “The Flow of Lupus” which reflects on the unpredictable nature of living with lupus. The flow of Lupus. As a fast-paced river, I...
by Nakita | Aug 24, 2026 | Latest News
Following the very sad, recent passing of our Chair, Elaine Holland, the Board has elected Ricky Chotai as the new Chair of Lupus UK. Ricky has been on the Board for four years, most recently as Vice Chair and Acting Chair. Ricky has supported Elaine, the Board and...
by Nakita | Aug 4, 2026 | Research Opportunities
Hydroxychloroquine (HCQ) is a treatment often used for autoimmune and inflammatory conditions. However, a small number of long-term users develop retinal toxicity (damage to the retinas in the eye), also known as HCQ retinopathy. This can lead to permanent sight loss....
by Nakita | Jul 6, 2026 | Latest News
A clinical trial in the UK has shown a new therapy could help treat severe lupus. It is called CAR-T cell therapy, and it is already used to treat certain cancers. What is CAR-T cell therapy? CAR-T cell therapy is a type of medicine called immunotherapy....
