by Nakita | Sep 25, 2026 | Blog
Government consultations are an opportunity for organisations and the public to share evidence, experiences and recommendations before decisions are made. For Lupus UK, they are an important way to ensure that the experiences of people living with lupus are included...
by Nakita | Sep 15, 2026 | Research Opportunities
The All-Party Parliamentary Group (APPG) on Black Health has launched a cardiovascular disease (CVD) Call for Evidence to hear from members of Black African and Caribbean communities across the UK. Cardiovascular disease (including conditions such as high blood...
by Nakita | Sep 15, 2026 | Research Opportunities
A research team is getting ready to open a new trial exploring the role of a novel diet in lupus. As part of this process, they have created a participant information sheet (PIS). This is the document given to people invited to join. It explains what the study is...
by Nakita | Sep 15, 2026 | Research Opportunities
Lupus Awareness Month is our annual campaign to raise understanding of lupus and of the support available. This year we would like to share real experiences of that support, so more people know what is there and how to reach it. We are looking for short testimonials...
by Nakita | Sep 15, 2026 | Research Opportunities
A research team is getting ready to recruit for a new lupus trial called STRATIFY. They have made a short video to introduce the trial to people who might be interested in taking part. Before the video is used, the team would like to hear from people affected by lupus...
by Nakita | Sep 3, 2026 | Latest News
This article includes information about three people dying in clinical trial for CAR-T. We understand this may be difficult for some people to read about, and encourage you to reach out for support if you need it. You can find links to places to find support and...
by Nakita | Aug 26, 2026 | Blog
Poetry can be a powerful way to express feelings and experiences that may be difficult to put into words. Bethany has written a poem “The Flow of Lupus” which reflects on the unpredictable nature of living with lupus. The flow of Lupus. As a fast-paced river, I...
by Nakita | Aug 24, 2026 | Latest News
Following the very sad, recent passing of our Chair, Elaine Holland, the Board has elected Ricky Chotai as the new Chair of Lupus UK. Ricky has been on the Board for four years, most recently as Vice Chair and Acting Chair. Ricky has supported Elaine, the Board and...
by Nakita | Aug 4, 2026 | Research Opportunities
Express Interest Do you have kidney disease due to lupus? Researchers at King’s College London are looking for adults with kidney disease due to lupus to take part in an online research interview exploring views on immune suppressing treatment and monitoring. ...
by Nakita | Aug 4, 2026 | Research Opportunities
Hydroxychloroquine (HCQ) is a treatment often used for autoimmune and inflammatory conditions. However, a small number of long-term users develop retinal toxicity (damage to the retinas in the eye), also known as HCQ retinopathy. This can lead to permanent sight loss....
