by Nakita | Sep 3, 2026 | Latest News
This article includes information about three people dying in clinical trial for CAR-T. We understand this may be difficult for some people to read about, and encourage you to reach out for support if you need it. You can find links to places to find support and...
by Nakita | Aug 26, 2026 | Blog
Poetry can be a powerful way to express feelings and experiences that may be difficult to put into words. Bethany has written a poem “The Flow of Lupus” which reflects on the unpredictable nature of living with lupus. The flow of Lupus. As a fast-paced river, I...
by Nakita | Aug 24, 2026 | Latest News
Following the very sad, recent passing of our Chair, Elaine Holland, the Board has elected Ricky Chotai as the new Chair of Lupus UK. Ricky has been on the Board for four years, most recently as Vice Chair and Acting Chair. Ricky has supported Elaine, the Board and...
by Nakita | Aug 4, 2026 | Research Opportunities
Express Interest Do you have kidney disease due to lupus? Researchers at King’s College London are looking for adults with kidney disease due to lupus to take part in an online research interview exploring views on immune suppressing treatment and monitoring. ...
by Nakita | Aug 4, 2026 | Research Opportunities
Hydroxychloroquine (HCQ) is a treatment often used for autoimmune and inflammatory conditions. However, a small number of long-term users develop retinal toxicity (damage to the retinas in the eye), also known as HCQ retinopathy. This can lead to permanent sight loss....
by Nakita | Aug 4, 2026 | Research Opportunities
Would you like to take part in a study exploring your reasons for and experiences of attending A&E for help with your persistent pain? Deadline: 15th August 2026 Location: Online When: Interviews will take place during August 2026 Interested in taking part?...
by Nakita | Jul 6, 2026 | Latest News
A clinical trial in the UK has shown a new therapy could help treat severe lupus. It is called CAR-T cell therapy, and it is already used to treat certain cancers. What is CAR-T cell therapy? CAR-T cell therapy is a type of medicine called immunotherapy....
by Nakita | Jun 24, 2026 | Latest News
We are excited that the updated British Society for Rheumatology (BSR) guidelines for lupus have been published. This update represents a huge amount of progress in research, understanding, and treatment since the first UK guidelines were published almost ten years...
by Nakita | Jun 18, 2026 | Blog, Latest News
We are delighted to welcome Eleanor and Ann-Marie to the Lupus UK Staff Team! Eleanor has joined the Fundraising & Marketing Development team as our Fundraising & Stewardship Officer, and Ann-Marie has joined the Community Services team as our Community...
by Nakita | Jun 11, 2026 | Latest News, Research Opportunities
In this article, we use “lupus” instead of “SLE” (systemic lupus erythematosus). In England and Wales, doctors can use a medicine called obinutuzumab to treat kidney disease caused by lupus. You might know this as lupus nephritis. Research has shown that obinutuzumab...
