by Nakita | Nov 11, 2026 | Research Opportunities
Lots of people affected by lupus feel research isn’t for them, or never hear about it. We’d like to understand why, and what would make it easier to get involved. Whether you’ve taken part in research before or not, your experience helps us see the bigger picture....
by Nakita | Nov 11, 2026 | Blog
Ever wondered who’s behind some of the lupus research you hear about? Meet four of the people working on the STRATIFY Lupus trial, including researchers, rheumatologists and a trial manager. From hopes for more personalised treatment to a love of acrobatics, they tell...
by Nakita | Nov 10, 2026 | Research Opportunities
A lot of young people are in school every day while managing pain, fatigue, appointments or symptoms nobody else can see. This rarely gets asked about. This study looks at what school was actually like for young people who lived with a long term or fluctuating health...
by Nakita | Nov 10, 2026 | Research Opportunities
Dr Jack Arnold and Dr Shipa Muhammad are developing a digital checklist for people affected by lupus who are preparing for clinic appointments. Based on the concerns a user adds, it will create a prioritised list of things to raise with a GP. It will also share...
by Nakita | Nov 10, 2026 | Research Opportunities
Healthy volunteers needed for an online research study. Will you share this with your friends and family who might be able to take part? What happens when lupus affects your thinking but there’s no easy way to show it? For many people living with lupus,...
by Nakita | Nov 10, 2026 | Research Opportunities
Dr Shipa Muhammad is creating a new tool to help measure and monitor how active someone’s lupus is. The aim is to create a questionnaire that can be completed entirely by patients and potentially used for remote assessments. It is based on the checklist that lupus...
by Nakita | Nov 10, 2026 | Research Opportunities
The research team are inviting adults living with chronic pain to take part in a Royal Holloway, University of London research study. People with chronic pain can sometimes feel that their experiences are dismissed, questioned or misunderstood. They want to understand...
by Nakita | Nov 5, 2026 | Latest News
In this article, we use “lupus” instead of “SLE” (systemic lupus erythematosus). Viruses like flu, COVID-19, and respiratory syncytial virus (RSV) spread easily during the colder months. They can cause serious illness in people with lupus taking immunosuppressant...
by Nakita | Oct 30, 2026 | Blog
Lupus UK attends medical and research conferences throughout the year to learn about the latest updates in research and treatment, meet with healthcare professionals, and collaborate with other organisations. Unfortunately, many of these events don’t allow the general...
by Nakita | Oct 29, 2026 | Blog
It’s been eight years since I’ve attended an outdoor festival. Once upon a time in Cokerland, the party people of the place had an understanding; April was for arrangements. Blossom on trees signalled t’was summer schedule setting season. Messages would be flying...