by Nakita | Sep 25, 2026 | Blog
Government consultations are an opportunity for organisations and the public to share evidence, experiences and recommendations before decisions are made. For Lupus UK, they are an important way to ensure that the experiences of people living with lupus are included...
by Nakita | Aug 26, 2026 | Blog
Poetry can be a powerful way to express feelings and experiences that may be difficult to put into words. Bethany has written a poem “The Flow of Lupus” which reflects on the unpredictable nature of living with lupus. The flow of Lupus. As a fast-paced river, I...
by Nakita | Jun 18, 2026 | Blog, Latest News
We are delighted to welcome Eleanor and Ann-Marie to the Lupus UK Staff Team! Eleanor has joined the Fundraising & Marketing Development team as our Fundraising & Stewardship Officer, and Ann-Marie has joined the Community Services team as our Community...
by Nakita | May 9, 2026 | Blog
People living with lupus face daily challenges depending on the severity of their flares and, along with other contributing factors, in my experience, most “good” days, need to be planned in advance. Spontaneity is a rare and wonderful thing, something most people...
by Nakita | May 9, 2026 | Blog
I live with Systemic Lupus Erythematosus (SLE), otherwise known as lupus. While it has changed my life in many ways, most people would never know it just by looking at me, and that is just the complicated reality of living with an invisible illness. “But you don’t...
by Nakita | Apr 30, 2026 | Blog
Within the last seven years, since receiving the lupus diagnosis, I’ve had to relearn, reinvent and re-love myself. I’ve researched and studied, educating myself about lupus and linked illnesses, in a way that I never did for my university degree. Being chronically...
