Latest News
Two CAR-T trials paused after three deaths: what we know so far
This article includes information about three people dying in clinical trial for CAR-T. We understand this may be difficult for some people to read about, and encourage you to reach out for support if you need it. You can find links to places to find support and...
Ricky Chotai Elected as the new Chair of Lupus UK
Following the very sad, recent passing of our Chair, Elaine Holland, the Board has elected Ricky Chotai as the new Chair of Lupus UK. Ricky has been on the Board for four years, most recently as Vice Chair and Acting Chair. Ricky has supported Elaine, the Board and...
Lupus in the news: CAR-T Therapy for Severe Lupus – Trial Results
A clinical trial in the UK has shown a new therapy could help treat severe lupus. It is called CAR-T cell therapy, and it is already used to treat certain cancers. CAR-T cell therapy is a type of medicine called immunotherapy. Immunotherapy helps make someone’s...
New UK guidelines for diagnosing, treating, and supporting people with lupus
We are excited that the updated British Society for Rheumatology (BSR) guidelines for lupus have been published. This update represents a huge amount of progress in research, understanding, and treatment since the first UK guidelines were published almost ten years...
Introducing Eleanor and Ann-Marie to the Lupus UK Staff Team!
We are delighted to welcome Eleanor and Ann-Marie to the Lupus UK Staff Team! Eleanor has joined the Fundraising & Marketing Development team as our Fundraising & Stewardship Officer, and Ann-Marie has joined the Community Services team as our Community...
Review to decide if obinutuzumab can be used for systemic lupus
In this article, we use “lupus” instead of “SLE” (systemic lupus erythematosus). In England and Wales, doctors can use a medicine called obinutuzumab to treat kidney disease caused by lupus. You might know this as lupus nephritis. Research has shown that obinutuzumab...
The Scottish Report: Improving Care For People Living With Lupus and Other Inflammatory Conditions
People living with immune-mediated inflammatory diseases (IMIDs), including lupus, in Scotland face persistent challenges in accessing timely diagnosis, equitable care, and the support needed to manage lifelong, complex conditions. The Scottish Report, led by the...
NICE publishes Quality Standard for rare disease
NICE publishes Quality Standard for rare disease NICE has published a Quality Standard for Rare Disease which sets out what high-quality sustainable care, treatment, and management should look like for rare diseases. We hope that this will help improve services, care,...
NICE approves obinutuzumab to treat lupus nephritis in England and Wales
NICE have recommended that a new treatment, obinutuzumab, can be used in combination with mycophenolate mofetil (MMF) to treat some patients with lupus nephritis in the NHS in England and Wales. Lupus nephritis is a type of kidney disease caused by lupus, which is an...
Stay Protected This Winter: Flu, COVID-19, and RSV Vaccines
Stay Protected This Winter: Flu, COVID-19, and RSV Vaccines During the colder months, viruses like flu, COVID-19, and respiratory syncytial virus (RSV) circulate more widely. For people with lupus, especially those taking immunosuppressive medicines, these infections...