About Lupus UK
Lupus UK was founded in November 1990, becoming a registered charity in December 1995. Prior to becoming Lupus UK, the organisation was known as the British SLE Aid Group (BSLEAG), founded by Cheryl Marcus in 1978.
About Lupus UK
You can read more about the history of Lupus UK in a retrospective written for the charity’s Silver Jubilee.
A further retrospective was written for the charity’s 30th anniversary in 2020.
To view our Charity Commission page, please click on the link below:
Who We Are
The Trustees
Managing the charity’s finances and ensuring Lupus UK operates within the requirements of UK charity law. The Trustees govern the charity and meet four times in each year.
Medical Advisory Panel
Lupus UK has appointed twelve prominent lupus specialists to advise on medical issues and on occasion to give expert opinion on grant applications which by their very nature are often scientific and complex. The twelve specialists cover a wide range of experience in lupus and allied conditions, and between them form an important part of the charity’s strengths.
The National Office
Caroline Olshewsky
Chief Executive Officer
Lucy Appleton-Stanyon
Finance and Resources Manager
Judith
Trust Manager
Rebekah Burns
Community Services Development Manager
Lisa Denison
Development Manager
Debbie Kinsey
Health Information Manager
Chelsea
Young People & Family Support Officer
Corina
Team Administrator
Francesca
Patient and Public Involvement and Engagement (PPIE) Officer
Louise
Support Services Coordinator
Nakita
Social Media & Projects Officer
The Trustees
Lupus UK’s Board of Trustees is composed of up to twelve members, appointed for terms of up to three years. They have responsibility for the legal and financial oversight of the charity, meeting regularly with the Chief Executive to review the finances, set strategic direction and make funding decisions.