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What would make research easier to get involved in?

by Nakita | Nov 11, 2026 | Research Opportunities

Lots of people affected by lupus feel research isn’t for them, or never hear about it. We’d like to understand why, and what would make it easier to get involved. Whether you’ve taken part in research before or not, your experience helps us see the bigger picture....

Present but Struggling? School Experiences with Chronic Health Conditions

by Nakita | Nov 10, 2026 | Research Opportunities

A lot of young people are in school every day while managing pain, fatigue, appointments or symptoms nobody else can see. This rarely gets asked about.  This study looks at what school was actually like for young people who lived with a long term or fluctuating health...

Is anything missing from this new clinic checklist?

by Nakita | Nov 10, 2026 | Research Opportunities

​​Dr Jack Arnold and Dr Shipa Muhammad are developing a digital checklist for people affected by lupus who are preparing for clinic appointments. Based on the concerns a user adds, it will create a prioritised list of things to raise with a GP. It will also share...

COGNILUP: Help researchers improve how cognitive difficulties in lupus are assessed

by Nakita | Nov 10, 2026 | Research Opportunities

Healthy volunteers needed for an online research study. Will you share this with your friends and family who might be able to take part? ​​What happens when lupus affects your thinking but there’s no easy way to show it? For many people living with lupus,...

Help develop the new Patient-Reported BILAG tool!

by Nakita | Nov 10, 2026 | Research Opportunities

​​Dr Shipa Muhammad is creating a new tool to help measure and monitor how active someone’s lupus is. The aim is to create a questionnaire that can be completed entirely by patients and potentially used for remote assessments. It is based on the checklist that lupus...

Understanding stigma and wellbeing in adults living with chronic pain

by Nakita | Nov 10, 2026 | Research Opportunities

The research team are inviting adults living with chronic pain to take part in a Royal Holloway, University of London research study. People with chronic pain can sometimes feel that their experiences are dismissed, questioned or misunderstood. They want to understand...
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Lupus UK | Registered Charity in England & Wales No: 1200671 | Scotland No: SC055189 | Operating in Northern Ireland