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Share Your Experience: APPG on Black Health CVD Call for Evidence

by Nakita | Sep 15, 2026 | Research Opportunities

The All-Party Parliamentary Group (APPG) on Black Health has launched a cardiovascular disease (CVD) Call for Evidence to hear from members of Black African and Caribbean communities across the UK.  Cardiovascular disease (including conditions such as high blood...

Information Sheet Review for the SLE-DINE Trial

by Nakita | Sep 15, 2026 | Research Opportunities

A research team is getting ready to open a new trial exploring the role of a novel diet in lupus. As part of this process, they have created a participant information sheet (PIS). This is the document given to people invited to join. It explains what the study is...

Share your experience of Lupus UK support for Lupus Awareness Month

by Nakita | Sep 15, 2026 | Research Opportunities

Lupus Awareness Month is our annual campaign to raise understanding of lupus and of the support available. This year we would like to share real experiences of that support, so more people know what is there and how to reach it.  We are looking for short testimonials...

Recruitment Video Review for New Lupus STRATIFY Trial

by Nakita | Sep 15, 2026 | Research Opportunities

A research team is getting ready to recruit for a new lupus trial called STRATIFY. They have made a short video to introduce the trial to people who might be interested in taking part. Before the video is used, the team would like to hear from people affected by lupus...

Withdrawing Immunosuppression in Patients with Lupus Nephritis in Remission: A Patient Perspective

by Nakita | Aug 4, 2026 | Research Opportunities

Express Interest Do you have kidney disease due to lupus?  Researchers at King’s College London are looking for adults with kidney disease due to lupus to take part in an online research interview exploring views on immune suppressing treatment and monitoring.   ...

Genetic Risk of Hydroxychloroquine Retinopathy

by Nakita | Aug 4, 2026 | Research Opportunities

Hydroxychloroquine (HCQ) is a treatment often used for autoimmune and inflammatory conditions. However, a small number of long-term users develop retinal toxicity (damage to the retinas in the eye), also known as HCQ retinopathy. This can lead to permanent sight loss....
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Lupus UK | Registered Charity in England & Wales No: 1200671 | Scotland No: SC055189 | Operating in Northern Ireland