by Nakita | Oct 13, 2026 | Research Opportunities
Researchers are not asking people to take part in the AIM study yet. They would instead love your feedback on how to find and approach people who might be suitable to take part in future, and how samples and health information should be used. Express Interest What is...
by Nakita | Oct 13, 2026 | Research Opportunities
A research team from the University of Nottingham want to understand the experiences of people who have an autoimmune disease and have tried a ketogenic, carnivore or other very-low carb diet. This includes how people implement these diets, and if they report changes...
by Nakita | Sep 15, 2026 | Research Opportunities
Lupus Awareness Month is our annual campaign to raise understanding of lupus and of the support available. This year we would like to share real experiences of that support, so more people know what is there and how to reach it. We are looking for short testimonials...
by Nakita | Aug 4, 2026 | Research Opportunities
Hydroxychloroquine (HCQ) is a treatment often used for autoimmune and inflammatory conditions. However, a small number of long-term users develop retinal toxicity (damage to the retinas in the eye), also known as HCQ retinopathy. This can lead to permanent sight loss....
by Nakita | Jun 11, 2026 | Latest News, Research Opportunities
In this article, we use “lupus” instead of “SLE” (systemic lupus erythematosus). In England and Wales, doctors can use a medicine called obinutuzumab to treat kidney disease caused by lupus. You might know this as lupus nephritis. Research has shown that obinutuzumab...
by Nakita | May 21, 2026 | Research Opportunities
BILAG Biologics Register Are you starting treatment with a biologic, biosimilar or other new therapy for your lupus? You could be eligible to join the BILAG Biologics Register (BR) and help them collect important data about the safety and effectiveness of different...
