by Nakita | Nov 21, 2025 | Latest News
Stay Protected This Winter: Flu, COVID-19, and RSV Vaccines During the colder months, viruses like flu, COVID-19, and respiratory syncytial virus (RSV) circulate more widely. For people with lupus, especially those taking immunosuppressive medicines, these infections...
by Nakita | Oct 30, 2025 | Blog
I’m now 24 years into my journey with Systemic Lupus Erythematosus (SLE). It began when I was just 18 — with rashes across my face in that well-known butterfly shape. At that time, I didn’t know what it was. I only knew that something inside me had changed. I was...
by Nakita | Oct 30, 2025 | Blog
I was diagnosed with Lupus (SLE) in December 2023, after being admitted to hospital with severe swelling and painful scarring on my hands, feet, and legs. In the weeks leading up to that, I had experienced pain and swelling in my ankles but kept brushing it off. Then...
by Nakita | Oct 14, 2025 | Blog
What is PPIE? Explains PPIE and why it matters Published: November 2025 Reading time: 10 mins PPIE stands for Patient and Public Involvement and Engagement It means people affected by lupus and researchers working together, so research focuses on the questions that...
by Nakita | Oct 14, 2025 | Latest News
Introducing the Lupus UK Research Network Explores the Lupus UK Research Network, the benefits of getting involved and answers common questions Published: November 2025. Reading time:10 mins Research into lupus has made great progress, helping us understand more than...
by Nakita | Oct 13, 2025 | Blog
I never imagined a simple rash on my face would mark the beginning of a long, exhausting health journey. Unfortunately for me, that rash was only the start of my battle with lupus. Back in early 2022, I returned home from a holiday in Zimbabwe with a strange rash...
by Nakita | Oct 3, 2025 | Blog
My name is CJ Brown, I’m 22 years old and I live with lupus. When I was around the age of 7-9 years old, I kept falling sick. I would keep having chest infections and my mom would bring me to the hospital. The healthcare professionals would say “it’s just a chest...
by Nakita | Sep 29, 2025 | Blog
Article by Isabella S. Lupus and Sleep As someone who has lived with lupus for years, I wanted to share my experience with sleep and fatigue and what has helped me cope. Sleep and lupus have a complicated relationship, and if you’re reading this and are nodding...
by Nakita | Sep 1, 2025 | Latest News
From 1st September 2025, more people will be able to get the Shingrix shingles vaccine on the NHS. This includes anyone aged 18 or older (with no upper age limit) who has a weakened immune system. Until now, it was only given to people with weakened immune systems...
by Nakita | Aug 15, 2025 | Latest News
Understanding CAR-T Therapy for Lupus: New Video Series The animated videos were funded by Autolus Ltd. Autolus had no input into the content of the video, and Lupus UK held full editorial control and remain independent of Autolus. Autolus did not fund and had no...
