by Nakita | Feb 7, 2026 | Research Opportunities
IMID BioResource Be part of the Immune Mediated Inflammatory Diseases (IMID) BioResource! It’s a research tissue bank of 18,000 individuals with immune-mediated diseases participating in health research. Currently, however, the patient population is not accurately...
by Nakita | Jan 22, 2026 | Latest News
NICE approves obinutuzumab to treat lupus nephritis in England and Wales NICE have recommended that a new treatment, obinutuzumab, can be used in combination with mycophenolate mofetil (MMF) to treat some patients with lupus nephritis in the NHS in England and Wales. ...
by Nakita | Jan 20, 2026 | Blog
Article by Amber S. Today, Monday 20th January 2026, is the International Day of Acceptance – a day dedicated to embracing life as it is, with all its challenges and changes. For those of us living with a chronic illness, acceptance isn’t just a word. It’s a daily...
by Nakita | Nov 21, 2025 | Latest News
Stay Protected This Winter: Flu, COVID-19, and RSV Vaccines During the colder months, viruses like flu, COVID-19, and respiratory syncytial virus (RSV) circulate more widely. For people with lupus, especially those taking immunosuppressive medicines, these infections...
by Nakita | Oct 30, 2025 | Blog
I’m now 24 years into my journey with Systemic Lupus Erythematosus (SLE). It began when I was just 18 — with rashes across my face in that well-known butterfly shape. At that time, I didn’t know what it was. I only knew that something inside me had changed. I was...
by Nakita | Oct 30, 2025 | Blog
I was diagnosed with Lupus (SLE) in December 2023, after being admitted to hospital with severe swelling and painful scarring on my hands, feet, and legs. In the weeks leading up to that, I had experienced pain and swelling in my ankles but kept brushing it off. Then...
by Nakita | Oct 14, 2025 | Blog
What is PPIE? Explains PPIE and why it matters Published: November 2025 Reading time: 10 mins PPIE stands for Patient and Public Involvement and Engagement It means people affected by lupus and researchers working together, so research focuses on the questions that...
by Nakita | Oct 14, 2025 | Latest News
Introducing the Lupus UK Research Network Explores the Lupus UK Research Network, the benefits of getting involved and answers common questions Published: November 2025. Reading time:10 mins Research into lupus has made great progress, helping us understand more than...
by Nakita | Oct 13, 2025 | Blog
I never imagined a simple rash on my face would mark the beginning of a long, exhausting health journey. Unfortunately for me, that rash was only the start of my battle with lupus. Back in early 2022, I returned home from a holiday in Zimbabwe with a strange rash...
by Nakita | Oct 3, 2025 | Blog
My name is CJ Brown, I’m 22 years old and I live with lupus. When I was around the age of 7-9 years old, I kept falling sick. I would keep having chest infections and my mom would bring me to the hospital. The healthcare professionals would say “it’s just a chest...
