by Nakita | Mar 27, 2026 | Blog
Article by Debbie Kinsey, Health Information, Policy, & Research Manager SLEuro is a conference for researchers and healthcare professionals across Europe to come together and share the latest research, treatment, and support for people with lupus. Although...
by Nakita | Feb 28, 2026 | Latest News
NICE publishes Quality Standard for rare disease NICE has published a Quality Standard for Rare Disease which sets out what high-quality sustainable care, treatment, and management should look like for rare diseases. We hope that this will help improve services, care,...
by Nakita | Feb 7, 2026 | Research Opportunities
The General Pharmaceutical Council (GPhC) The General Pharmaceutical Council (GPhC) makes sure pharmacy is safe and effective for patients and the public. They are inviting patients, carers, and members of the public to share their views on pharmacy services across...
by Nakita | Feb 7, 2026 | Research Opportunities
IMID BioResource Be part of the Immune Mediated Inflammatory Diseases (IMID) BioResource! It’s a research tissue bank of 18,000 individuals with immune-mediated diseases participating in health research. Currently, however, the patient population is not accurately...
by Nakita | Jan 22, 2026 | Latest News
NICE approves obinutuzumab to treat lupus nephritis in England and Wales NICE have recommended that a new treatment, obinutuzumab, can be used in combination with mycophenolate mofetil (MMF) to treat some patients with lupus nephritis in the NHS in England and Wales. ...
by Nakita | Jan 20, 2026 | Blog
Article by Amber S. Today, Monday 20th January 2026, is the International Day of Acceptance – a day dedicated to embracing life as it is, with all its challenges and changes. For those of us living with a chronic illness, acceptance isn’t just a word. It’s a daily...
by Nakita | Nov 21, 2025 | Latest News
Stay Protected This Winter: Flu, COVID-19, and RSV Vaccines During the colder months, viruses like flu, COVID-19, and respiratory syncytial virus (RSV) circulate more widely. For people with lupus, especially those taking immunosuppressive medicines, these infections...
by Nakita | Oct 30, 2025 | Blog
I’m now 24 years into my journey with Systemic Lupus Erythematosus (SLE). It began when I was just 18 — with rashes across my face in that well-known butterfly shape. At that time, I didn’t know what it was. I only knew that something inside me had changed. I was...
by Nakita | Oct 30, 2025 | Blog
I was diagnosed with Lupus (SLE) in December 2023, after being admitted to hospital with severe swelling and painful scarring on my hands, feet, and legs. In the weeks leading up to that, I had experienced pain and swelling in my ankles but kept brushing it off. Then...
by Nakita | Oct 14, 2025 | Blog
What is PPIE? Explains PPIE and why it matters Published: November 2025 Reading time: 10 mins PPIE stands for Patient and Public Involvement and Engagement It means people affected by lupus and researchers working together, so research focuses on the questions that...
