Research for Young People and Families

We are currently developing our Research Network. To learn more about what this means, you can read our article here. You will also be able to sign up to our Research Network mailing list. 

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UKJSLE Cohort Study Group

The UK JSLE Cohort Study and Repository aims to find out more about what causes lupus and how it affects children and young people, in order to try and develop better treatments. The Cohort Study recruits patients aged up to and including 16 years of age from more than 20 hospitals all over the UK. It started recruiting patients in 2006 and over 550 young people with lupus from across the UK have taken part so far. They have undertaken a wide range of research looking at the immune system, genetics and treatments in lupus. They publish their research in various medical journals and discuss their results with other researchers around the world to help generate new ideas on how to help look after patients with lupus. You can find out more about the study on their website:
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