Need to Talk?

Sometimes certain situations can be tough, such as awaiting test results or being newly diagnosed, which is why talking to someone can help reduce any worries or anxiety you may have.

LUPUS UK is able to support you, your family and friends through our:
• Trained telephone Contacts
• HealthUnlocked community forum
• Regional groups


We have trained volunteers, called Contacts, who either have lupus themselves or have a family member with the condition. You can chat with our Contacts over the telephone. They are not medically trained but are there to offer both emotional and general support and signpost you to someone who can advise you. The telephone service is confidential, and you can disclose as much as you wish. The support service is free apart from the cost of the call.

To request details of your local contact CLICK HERE

HealthUnlocked Community Forum

The HealthUnlocked Community is a peer support group facilitated by LUPUS UK.

The community is available for free to anybody affected by lupus to get information, support and advice from other people who are similarly affected. We welcome people with any form of lupus (SLE, discoid lupus, drug-induced lupus, cutaneous lupus etc.) as well as those with associated conditions such as mixed connective tissue disease (MCTD) and undifferentiated connective tissue disease (UCTD).

The community discusses a wide range of topics including; diagnosis, symptoms, medical appointments, medications and support available.

To join the forum CLICK HERE

Regional Groups

We have over 20 Regional Groups across the country supporting our members and those yet to be diagnosed. Our groups send out information leaflets, hold regular meetings and generally give support to others who sometimes just need someone to talk to. All of our groups are run by volunteers who give their spare time to the charity in helping others.

To find a Regional Group close to you CLICK HERE