Lots of people affected by lupus feel research isn’t for them, or never hear about it. We’d like to understand why, and what would make it easier to get involved.
Whether you’ve taken part in research before or not, your experience helps us see the bigger picture.
What you share will feed into how we talk about research, share opportunities and welcome people to our Research Network.
Deadline to sign up: Wednesday 2nd December 2026
When and where: Online via Microsoft Teams. Choose from:
- Option 1: Wednesday 2nd December 18:30 to 19:30
- Option 2: Thursday 3rd December 09:30 to 10:30
- Option 3: Thursday 3rd December 12:30 to 13:30
If you’d like to join but the dates or format don’t suit you, just email [email protected] and we’ll see what we can do.
What’s involved:
- Read an optional preparation guide that we’ll send before the session (5 to 10 minutes)
- Join an online discussion group and share your views (1 hour)
People we’re looking for:
- Aged 18 and over
- Living in the UK
- Living with, or supporting someone with, any type of lupus
- No research experience is needed to get involved – everyone’s thoughts are welcome!
Up to 8 people can take part in each focus group.
Payment: To recognise your time and expertise, a £27.50 payment will be made via bank transfer after you have attended the session. This rate is in line with official guidance from the National Institute for Health and Care Research (NIHR).
Expenses: Not provided
How your input will be used:
Your views will help shape:
- How we talk about research
- How we share opportunities
- How people join and are welcomed into our Research Network
We’ll consider every suggestion, though some may take time and some may not be possible. These sessions also can’t change how other organisations design or run their studies, though we can share general themes with researchers we work with.
Feedback: We’ll email everyone who takes part a short summary of what we heard and what we’re looking at next.
Interested in getting involved?
Questions? Email Francesca at [email protected]
Organised by: Lupus UK
Funded by: Generously supported by a grant from The Hospital Saturday Fund.