Healthy volunteers needed for an online research study. Will you share this with your friends and family who might be able to take part?
What happens when lupus affects your thinking but there’s no easy way to show it?
For many people living with lupus, difficulties with memory, concentration, finding words or processing information can make even ordinary everyday activities challenging. Yet these difficulties are often hard to measure which means that an important part of living with lupus can go unrecognised.
COGNILUP is working to change that.
Led by Professor Laurent Arnaud, the research aims to develop and validate a series of easy to do tests that could help healthcare professionals better recognise and assess these difficulties.
But first, researchers need to understand how people without lupus perform on the same tests. Without that comparison it is much harder to interpret what the results mean for someone living with lupus.
And that’s where you can make a difference!
The research team are looking for healthy adult volunteers to complete an online test lasting around 40 to 45 minutes. And the good news? Taking part is much easier than you might think! The tests involve a series of short, interactive activities, some of which are fun to do! It’s not an exam and there’s nothing to prepare!
By giving a little of your time, you could help make one of the less visible aspects of lupus easier to recognise, understand and assess.
Deadline: Recruitment is ongoing, with the current phase expected to continue until mid-December 2026. As the research progresses, further healthy volunteers may be invited to participate to help expand and update the reference data.
When and where: In your own time, online
What’s involved:
- Read the study information and provide consent to participate
- Complete a series of online tests in one sitting in a quiet environment, where you will not be interrupted (around 40 to 45 minutes)
- You will need a desktop or laptop computer, a separate mouse (rather than a trackpad), and working sound
There is no need to travel or attend an appointment.
People they’re looking for:
- Healthy adults under the age of 60
- People who do not have lupus
- People without a known cognitive impairment
- Native English speakers
- People able to complete the assessment online using the required equipment
No research experience is needed to get involved – everyone’s thoughts are welcome!
Please share this opportunity with friends or family members who may be eligible and able to take part!
Payment & Expenses: Not provided. Participation is entirely voluntary!
Feedback: Individual results or personalised feedback will not be provided to participants. However, we hope to share an update when this stage of the research has been completed, so that volunteers can see how their contribution has helped the study progress.
Interested in taking part?
Questions? Email Professor Laurent Arnaud at [email protected]
For questions about the processing of your personal data, please contact Professor Laurent Arnaud at [email protected]. Instructions for completing the assessment and further information are available through the study link.
Organised by: COGNILUP research team, led by Professor Laurent Arnaud, Centre National de Référence des Maladies Autoimmunes Rares, Hôpital de Hautepierre, Strasbourg, France.
Funded by: National Reference Center of Strasbourg