A lot of young people are in school every day while managing pain, fatigue, appointments or symptoms nobody else can see. This rarely gets asked about.
This study looks at what school was actually like for young people who lived with a long term or fluctuating health condition. It also explores the gap between the support that existed on paper and the support students could actually find, trust and use. By listening to people who have been through it, the research team want to help schools understand what really makes a difference. This is so that the next generation of students managing a health condition feel more supported, more included and less alone. Questions touch on:
- Your school experience
- Whether support was there and whether it helped
- How you felt about belonging and doing well
The project is run by The Inclusion and Equity Leadership Association (IELA). Using your feedback, the study team will create various materials. These may include a short research report, a practical toolkit for schools, and a student voice summary.
Deadline: Sunday 31st January 2027 (both the survey and interview must be completed by this date)
When and where: At a time that suits you, online
What’s involved:
- 10-minute survey
- Optional 30-minute interview with anyone who would be comfortable – you can take part at any time that suits you before the deadline
For more information email Hafsa – they will send the full participant information sheet. You can also find it on the first page of the survey.
People they’re looking for:
- Aged 18 and over
- Had a long term or fluctuating health condition while you were at school
- Left school in the last 5 years
There’s no need for a diagnosis or any medical evidence. The study team are just interested in your experience.
Payment & Expenses: Not provided
Feedback: If you would like to hear what comes out of the study, let the team know when you take part or email Hafsa. They will share a summary of the findings once ready.
Interested in taking part?
Questions? Email Hafsa Mohammed, Researcher at IELA, at [email protected]
Funded by: This is a charity-led project run by The Inclusion and Equity Leadership Association (IELA; part of the Boarding School’s Association [BSA] Group). The design and all participant-facing materials have been reviewed and formally signed off by BSA’s CEO, Robin Fletcher, under BSA Group’s governance process.