by Nakita | Nov 21, 2025 | Latest News
Stay Protected This Winter: Flu, COVID-19, and RSV Vaccines During the colder months, viruses like flu, COVID-19, and respiratory syncytial virus (RSV) circulate more widely. For people with lupus, especially those taking immunosuppressive medicines, these infections...
by Nakita | Oct 30, 2025 | Blog
I’m now 24 years into my journey with Systemic Lupus Erythematosus (SLE). It began when I was just 18 — with rashes across my face in that well-known butterfly shape. At that time, I didn’t know what it was. I only knew that something inside me had changed. I was...
by Nakita | Oct 30, 2025 | Blog
I was diagnosed with Lupus (SLE) in December 2023, after being admitted to hospital with severe swelling and painful scarring on my hands, feet, and legs. In the weeks leading up to that, I had experienced pain and swelling in my ankles but kept brushing it off. Then...
by Nakita | Oct 14, 2025 | Blog
What is PPIE? Explains PPIE and why it matters Published: November 2025 Reading time: 10 mins PPIE stands for Patient and Public Involvement and Engagement It means people affected by lupus and researchers working together, so research focuses on the questions that...
by Nakita | Oct 14, 2025 | Latest News
Introducing the Lupus UK Research Network Explores the Lupus UK Research Network, the benefits of getting involved and answers common questions Published: November 2025. Reading time:10 mins Research into lupus has made great progress, helping us understand more than...
