by Nakita | Jan 20, 2026 | Blog
Article by Amber S. Today, Monday 20th January 2026, is the International Day of Acceptance – a day dedicated to embracing life as it is, with all its challenges and changes. For those of us living with a chronic illness, acceptance isn’t just a word. It’s a daily...
by Nakita | Nov 21, 2025 | Latest News
Stay Protected This Winter: Flu, COVID-19, and RSV Vaccines During the colder months, viruses like flu, COVID-19, and respiratory syncytial virus (RSV) circulate more widely. For people with lupus, especially those taking immunosuppressive medicines, these infections...
by Nakita | Oct 30, 2025 | Blog
I’m now 24 years into my journey with Systemic Lupus Erythematosus (SLE). It began when I was just 18 — with rashes across my face in that well-known butterfly shape. At that time, I didn’t know what it was. I only knew that something inside me had changed. I was...
by Nakita | Oct 30, 2025 | Blog
I was diagnosed with Lupus (SLE) in December 2023, after being admitted to hospital with severe swelling and painful scarring on my hands, feet, and legs. In the weeks leading up to that, I had experienced pain and swelling in my ankles but kept brushing it off. Then...
by Nakita | Oct 14, 2025 | Blog
What is PPIE? Explains PPIE and why it matters Published: November 2025 Reading time: 10 mins PPIE stands for Patient and Public Involvement and Engagement It means people affected by lupus and researchers working together, so research focuses on the questions that...
