by Nakita | May 21, 2026 | Feedback
Co-Development of a Person-Centred Physical Activity Intervention for People with Lupus (PPAI-LUPUS) Feedback Lead applicant: Dr Tiago Peçanha – Manchester Metropolitan University Funded by: Health Innovation Manchester – MAHSC Grant Project Overview: This...
by Nakita | May 21, 2026 | Research Opportunities
BILAG Biologics Register Are you starting treatment with a biologic, biosimilar or other new therapy for your lupus? You could be eligible to join the BILAG Biologics Register (BR) and help them collect important data about the safety and effectiveness of different...
by Nakita | May 9, 2026 | Blog
People living with lupus face daily challenges depending on the severity of their flares and, along with other contributing factors, in my experience, most “good” days, need to be planned in advance. Spontaneity is a rare and wonderful thing, something most people...
by Nakita | May 9, 2026 | Blog
I live with Systemic Lupus Erythematosus (SLE), otherwise known as lupus. While it has changed my life in many ways, most people would never know it just by looking at me, and that is just the complicated reality of living with an invisible illness. “But you don’t...
by Nakita | Apr 30, 2026 | Blog
Within the last seven years, since receiving the lupus diagnosis, I’ve had to relearn, reinvent and re-love myself. I’ve researched and studied, educating myself about lupus and linked illnesses, in a way that I never did for my university degree. Being chronically...
