In November 2022, the British Society for Rheumatology (BSR) launched two updated guidelines containing evidence and best practice for prescribing rheumatology medications during conception, pregnancy and breastfeeding. This means we need to update our booklet to include the latest information.

We want to hear from you about what else you would like to see in an updated booklet.

We record all feedback we get about our publications, and use this to help us improve them when we update them. But we know that not everyone emails or calls us about what they think, and it’s important we find out what people would find most helpful so it can meet the needs of as many people as possible. We’re interested in what you think about the information in the booklet, if there’s information missing, how easy it is to use, and how the booklet looks and feels.

There are two ways you can give us your thoughts on our existing Lupus: A Guide to Pregnancy booklet, and you can do whichever you prefer:

1). Complete our short survey with prompt questions to help you think about different elements of the booklet. All questions are optional and your answers will be anonymous. You can find the survey HERE.  

2). Contact Debbie Kinsey on debbie@lupusuk.org.uk or 01708 731251 to give her any thoughts or feedback you have – this can be as long or as short as you would like!

If you don’t already have a copy, you can download our existing booklet from our website here. Or contact Debbie and she can send you a copy in the post.

The deadline for giving us your thoughts is 8th April 2024. We will then look at all the feedback as well as what the latest medical updates are, and work with our specialist medical advisors and a small group of people with lupus to make any changes or additions. We won’t be able to make every change that everyone suggests, but we will take all the feedback into consideration.

Thank you for taking the time to share your thoughts with us.