Have your say on the way your services are working for your Rare Autoimmune Rheumatic Disease (RAIRD)

At least 170,000 people in the UK live with rare autoimmune rheumatic diseases like vasculitis, lupus, scleroderma and Sjögren’s disease. The Rare Autoimmune Rheumatic Disease Alliance (RAIRDA) are conducting a survey to find out what patients think about the quality of their care, guidance and treatment for their Rare Autoimmune Rheumatic Disease (RAIRD). The aim of the survey is to provide valuable insights into what is working well about patients’ experience of care, areas for improvement, and aims to support the way services are provided. It is important that we hear about your experiences even if you haven’t visited your GP practice or local hospital recently.

To complete the survey please use the following link: https://ipsos.uk/RAIRDAsurvey2024 or scan the QR code below:

If possible, please do take the time to take part.  It provides vital information to RAIRDA to identify what’s working well and what can be improved. It helps to identify inequalities in experience too, as the results can be analysed across different protected characteristics. 

#RAIRDaware