Our History

LUPUS UK was founded in November 1990, becoming a registered charity in December 1995. Prior to becoming LUPUS UK, the organisation was known as the British SLE Aid Group (BSLEAG), founded by Cheryl Marcus in 1978.

You can read more about the history of LUPUS UK in a retrospective written for the charity's Silver Jubilee.


A further retrospective was written for the charity's 30th anniversary in 2020.

Who we are

The Trustees

Managing the charity's finances and ensuring LUPUS UK operates within the requirements of UK charity law. The Trustees govern the charity and meet four times in each year.

National Council

LUPUS UK's National Council includes representatives from each of the Regional Support Groups. They help to share important information to local members and contribute to LUPUS UK's planned activities through bi-annual meetings.

Medical Advisory Panel

LUPUS UK has appointed twelve prominent lupus specialists to advise on medical issues and on occasion to give expert opinion on grant applications which by their very nature are often scientific and complex. The twelve specialists cover a wide range of experience in lupus and allied conditions, and between them form an important part of the charity's strengths.

Helpful Links

If you would like to read the LUPUS UK constitution, please click below:


For access to our Annual Reports, please click on the link below:


The National Office

Caroline Olshewsky

Chief Executive

Chris Maker

Finance Manager

Janine Hirsch

Fundraising Manager

Alida Bennett

Office Manager

John Braybrook

Membership Officer

Judith Conners

Trust Manager

Debbie Kinsey

Health Information Officer

Michaella Smith

Volunteer Coordinator

Nakita Cambow

Social Media and Projects Officer

The Trustees

LUPUS UK's Board of Trustees is composed of up to twelve members, appointed for terms of up to three years. They have responsibility for the legal and financial oversight of the charity, meeting regularly with the Chief Executive to review the finances, set strategic direction and make funding decisions.