by Nakita | Oct 30, 2025 | Blog
I was diagnosed with Lupus (SLE) in December 2023, after being admitted to hospital with severe swelling and painful scarring on my hands, feet, and legs. In the weeks leading up to that, I had experienced pain and swelling in my ankles but kept brushing it off. Then...
by Nakita | Oct 14, 2025 | Blog
What is PPIE? Explains PPIE and why it matters Published: November 2025 Reading time: 10 mins PPIE stands for Patient and Public Involvement and Engagement It means people affected by lupus and researchers working together, so research focuses on the questions that...
by Nakita | Oct 13, 2025 | Blog
I never imagined a simple rash on my face would mark the beginning of a long, exhausting health journey. Unfortunately for me, that rash was only the start of my battle with lupus. Back in early 2022, I returned home from a holiday in Zimbabwe with a strange rash...
by Nakita | Oct 3, 2025 | Blog
My name is CJ Brown, I’m 22 years old and I live with lupus. When I was around the age of 7-9 years old, I kept falling sick. I would keep having chest infections and my mom would bring me to the hospital. The healthcare professionals would say “it’s just a chest...
by Nakita | Sep 29, 2025 | Blog
Article by Isabella S. Lupus and Sleep As someone who has lived with lupus for years, I wanted to share my experience with sleep and fatigue and what has helped me cope. Sleep and lupus have a complicated relationship, and if you’re reading this and are nodding...
by Nakita | May 10, 2025 | Blog
Hi, my name is Sarah. I am 46 years old, married, and a busy mum of 3. I also work as a Nurse Clinical Educator. Almost a year ago, I got a diagnosis of lupus. The diagnosis came after months and years of feeling unwell with various symptoms and health problems....
