by Nakita | May 10, 2025 | Blog
Hi, my name is Sarah. I am 46 years old, married, and a busy mum of 3. I also work as a Nurse Clinical Educator. Almost a year ago, I got a diagnosis of lupus. The diagnosis came after months and years of feeling unwell with various symptoms and health problems....
by Nakita | May 10, 2025 | Blog
Fifteen years ago, my life took a turn I never could have predicted. Diagnosed with lupus, I found myself navigating an unpredictable and often painful journey. There were moments when I felt at a disadvantage, as though life had placed obstacles in my path that I...
by Nakita | Apr 1, 2025 | Blog
In the past if someone were to ask me what my best feature was, I would without hesitation say my smile. People would always tell me that they “loved my smile”. I had a full set of pearly whites and was proud that my brightness could turn someone else’s frown upside...
by Nakita | Nov 19, 2024 | Blog
While daily doom scrolling, the algorithm understanding my frustrated state pushed the account @thisthingtheycallrecovery to my screen. Listening to Jenny, an amazing graphic designer and poet (who happens to be chronically ill) as she shared her poem, I could’ve...
by Nakita | Oct 24, 2024 | Blog
I knew something was wrong after ‘choosing’ to lay my head down on a rock in the sand on a freezing cold beach in Donegal, rather than attempt the planned walk with the rest of my family. When they woke me 4 hours later, I was confused, frozen and covered in HORSEFLY...
by lupusukadmin | May 17, 2024 | Blog
Introducing LUPUS UK Youth My name is Chelsea, and I am the new Young People and Family Support Officer at LUPUS UK. I am incredibly excited to take on this role as I have several ideas that I hope will benefit the lupus youth community. I live with lupus myself,...