by Nakita | Oct 14, 2025 | Blog
What is PPIE? Explains PPIE and why it matters Published: November 2025 Reading time: 10 mins PPIE stands for Patient and Public Involvement and Engagement It means people affected by lupus and researchers working together, so research focuses on the questions that...
by Nakita | Oct 13, 2025 | Blog
I never imagined a simple rash on my face would mark the beginning of a long, exhausting health journey. Unfortunately for me, that rash was only the start of my battle with lupus. Back in early 2022, I returned home from a holiday in Zimbabwe with a strange rash...
by Nakita | Oct 3, 2025 | Blog
My name is CJ Brown, I’m 22 years old and I live with lupus. When I was around the age of 7-9 years old, I kept falling sick. I would keep having chest infections and my mom would bring me to the hospital. The healthcare professionals would say “it’s just a chest...
by Nakita | Sep 29, 2025 | Blog
Article by Isabella S. Lupus and Sleep As someone who has lived with lupus for years, I wanted to share my experience with sleep and fatigue and what has helped me cope. Sleep and lupus have a complicated relationship, and if you’re reading this and are nodding...
by Nakita | May 10, 2025 | Blog
Hi, my name is Sarah. I am 46 years old, married, and a busy mum of 3. I also work as a Nurse Clinical Educator. Almost a year ago, I got a diagnosis of lupus. The diagnosis came after months and years of feeling unwell with various symptoms and health problems....
by Nakita | May 10, 2025 | Blog
Fifteen years ago, my life took a turn I never could have predicted. Diagnosed with lupus, I found myself navigating an unpredictable and often painful journey. There were moments when I felt at a disadvantage, as though life had placed obstacles in my path that I...
