Sarah’s Story

Sarah’s Story

Hi, my name is Sarah. I am 46 years old, married, and a busy mum of 3. I also work as a Nurse Clinical Educator. Almost a year ago, I got a diagnosis of lupus. The diagnosis came after months and years of feeling unwell with various symptoms and health problems....
“I Love Your Smile” By Maryann

“I Love Your Smile” By Maryann

In the past if someone were to ask me what my best feature was, I would without hesitation say my smile. People would always tell me that they “loved my smile”. I had a full set of pearly whites and was proud that my brightness could turn someone else’s frown upside...
Your life with lupus: what you need, what you want

Your life with lupus: what you need, what you want

Lupus UK is 35 years old in 2025, and we are taking this opportunity to develop our aims and priorities for the coming years. Your voice matters, and we are listening. We want to understand the needs and wants of the whole lupus community, to help us understand where...
“Fighting Fit” By Maryann

“Fighting Fit” By Maryann

While daily doom scrolling, the algorithm understanding my frustrated state pushed the account @thisthingtheycallrecovery to my screen. Listening to Jenny, an amazing graphic designer and poet (who happens to be chronically ill) as she shared her poem, I could’ve...
“Why Lupus Awareness Month is so Important” by Terri M

“Why Lupus Awareness Month is so Important” by Terri M

I knew something was wrong after ‘choosing’ to lay my head down on a rock in the sand on a freezing cold beach in Donegal, rather than attempt the planned walk with the rest of my family. When they woke me 4 hours later, I was confused, frozen and covered in HORSEFLY...