Your life with lupus: what you need, what you want

Your life with lupus: what you need, what you want

Lupus UK is 35 years old in 2025, and we are taking this opportunity to develop our aims and priorities for the coming years. Your voice matters, and we are listening. We want to understand the needs and wants of the whole lupus community, to help us understand where...
“Fighting Fit” By Maryann

“Fighting Fit” By Maryann

While daily doom scrolling, the algorithm understanding my frustrated state pushed the account @thisthingtheycallrecovery to my screen. Listening to Jenny, an amazing graphic designer and poet (who happens to be chronically ill) as she shared her poem, I could’ve...
“Why Lupus Awareness Month is so Important” by Terri M

“Why Lupus Awareness Month is so Important” by Terri M

I knew something was wrong after ‘choosing’ to lay my head down on a rock in the sand on a freezing cold beach in Donegal, rather than attempt the planned walk with the rest of my family. When they woke me 4 hours later, I was confused, frozen and covered in HORSEFLY...
Introducing LUPUS UK Youth

Introducing LUPUS UK Youth

Introducing LUPUS UK Youth My name is Chelsea, and I am the new Young People and Family Support Officer at LUPUS UK. I am incredibly excited to take on this role as I have several ideas that I hope will benefit the lupus youth community. I live with lupus myself,...
“Matters of the Mind” By Maryann

“Matters of the Mind” By Maryann

“Matters of the Mind” By Maryann There’s just something about walking out in nature that soothes me. Marvelling at the different shades, seeing the beautiful portrait of flowers, hearing the songs of the birds and symphonies of the winds. Nature steadies my heart...