by Nakita | Nov 19, 2024 | Blog
While daily doom scrolling, the algorithm understanding my frustrated state pushed the account @thisthingtheycallrecovery to my screen. Listening to Jenny, an amazing graphic designer and poet (who happens to be chronically ill) as she shared her poem, I could’ve...
by Debbie | Nov 14, 2024 | Latest News
What does good care and treatment for rare diseases mean to you? The Rare Disease Quality Statement Project is asking the rare disease community to complete their survey, to develop a set of statements which clearly set out what high-quality, sustainable care,...
by Debbie | Nov 8, 2024 | Latest News
Chimeric Antigen Receptor T-cell therapy (CAR-T) has previously shown positive results in treating blood cancers. Based on how this treatment works, efforts have turned towards exploring their potential in treating autoimmune diseases like lupus. What is CAR-T cell...
by Nakita | Oct 24, 2024 | Blog
I knew something was wrong after ‘choosing’ to lay my head down on a rock in the sand on a freezing cold beach in Donegal, rather than attempt the planned walk with the rest of my family. When they woke me 4 hours later, I was confused, frozen and covered in HORSEFLY...
by Nakita | Oct 18, 2024 | Latest News
Welcoming Lisa and Maryam to the LUPUS UK Staff Team! We hope you will join us in extending a very warm welcome to our new Development Manager, Lisa and Health Information Officer, Maryam. Lisa and Maryam joined in September and bring a wealth of experience and...
by Debbie | Oct 15, 2024 | Latest News
The NHS Autumn 2024 COVID-19 booster vaccination scheme is starting across England, Scotland, Wales and Northern Ireland. Eligible individuals will be able to get a booster vaccination at GP surgeries, some pharmacies and vaccination centres. If in England, you can...
by lupusukadmin | May 17, 2024 | Blog
Introducing LUPUS UK Youth My name is Chelsea, and I am the new Young People and Family Support Officer at LUPUS UK. I am incredibly excited to take on this role as I have several ideas that I hope will benefit the lupus youth community. I live with lupus myself,...
by lupusukadmin | May 16, 2024 | Blog
“Matters of the Mind” By Maryann There’s just something about walking out in nature that soothes me. Marvelling at the different shades, seeing the beautiful portrait of flowers, hearing the songs of the birds and symphonies of the winds. Nature steadies my heart...
by lupusukadmin | Apr 30, 2024 | Latest News
Updated Lupus and the Skin booklet available now We are proud to launch an updated version of our Lupus and the Skin information booklet. It is now available online and in hard copy from National Office. How did we decide to update this booklet? When we review any...
