Latest News
Introducing Lupus UK’s newest Ambassador!
We are thrilled to welcome Khiry Rowe-Hopkins to the Lupus UK family as our newest Ambassador! Khiry is a lupus advocate who is passionate about raising awareness and supporting the lupus community. Khiry has shown a huge commitment to the charity as a Volunteer for...
Fatigue management trial re-recruiting now: The FLIP Study
Fatigue management trial re-recruiting now: The FLIP Study A new trial is investigating whether an online fatigue management programme can help reduce the impact of fatigue in people with SLE. Background Many people with systemic lupus erythematosus experience high...
New review to decide if obinutuzumab for lupus nephritis can be used in the NHS in England and Wales
A new treatment, obinutuzumab, is being reviewed to see if it can be used in the NHS in England and Wales to treat lupus nephritis (lupus that affects the kidneys). Lupus UK will be submitting evidence to the review about the needs and experiences of people who have...
New lupus treatment trial recruiting now!
Lupus UK received a fee from BMS for the time spent to create this article. BMS checked the article to make sure the facts were correct, but Lupus UK had editorial control and remain independent of BMS. A new trial is assessing whether a type of immunosuppressant...
New report about lupus care in Wales
A new report has been published evaluating lupus care in Wales, using information from people living with lupus and healthcare professionals. The report found some strengths of how care for lupus is delivered, and some areas which could be improved. The findings and...
Spring 2025 COVID-19 booster vaccination scheme – what you need to know
The NHS Spring 2025 COVID-19 booster vaccination scheme is starting across England, Scotland, Wales and Northern Ireland. NHS staff has begun administering the first doses of the spring Covid-19 vaccine. NHS officials are urging those most at risk to secure their...
Welcoming Lucy to the Lupus UK Staff Team!
We hope you will join us in extending a very warm welcome to our new Finance and Resource Manager, Lucy. Lucy joined us in January and brings over 20 years of experience working with charities. We are so pleased to have Lucy on the team! Read Lucy's statement below: ...
Your life with lupus: what you need, what you want
Lupus UK is 35 years old in 2025, and we are taking this opportunity to develop our aims and priorities for the coming years. Your voice matters, and we are listening. We want to understand the needs and wants of the whole lupus community, to help us understand where...
Research in the news – The impact of misdiagnosis
A research team from Cambridge University has found that having a psychosomatic misdiagnosis (a misdiagnosis of a condition where physical symptoms are caused or worsened by psychological factors) before getting an autoimmune diagnosis can have a long-term impact on a...
Quality Statements for Rare Disease – have your say now!
What does good care and treatment for rare diseases mean to you? The Rare Disease Quality Statement Project is asking the rare disease community to complete their survey, to develop a set of statements which clearly set out what high-quality, sustainable care,...