What does good care and treatment for rare diseases mean to you? The Rare Disease Quality Statement Project is asking the rare disease community to complete their survey, to develop a set of statements which clearly set out what high-quality, sustainable care,...

Chimeric Antigen Receptor T-cell therapy (CAR-T) has previously shown positive results in treating blood cancers. Based on how this treatment works, efforts have turned towards exploring their potential in treating autoimmune diseases like lupus. What is CAR-T cell...

We hope you will join us in extending a very warm welcome to our new Development Manager, Lisa and Health Information Officer, Maryam. Lisa and Maryam joined in September and bring a wealth of experience and enthusiasm with them. We are so pleased to have them on the...

The NHS Autumn 2024 COVID-19 booster vaccination scheme is starting across England, Scotland, Wales and Northern Ireland. Eligible individuals will be able to get a booster vaccination at GP surgeries, some pharmacies and vaccination centres. If in England, you can...

We are proud to launch an updated version of our Lupus and the Skin information booklet. It is now available online and in hard copy from National Office. How did we decide to update this booklet? When we review any information materials, we consider if there have...