OTHER UK ASSOCIATIONS/ORGANISATIONS

www.aps-support.org.uk : APS Support UK (for antiphospholipid syndrome/Hughes syndrome)

www.versusarthritis.org : The charity leading the fight against arthritis

www.arthritisnorth.com : Private Consulting Rooms, Belfast

www.bdng.org.uk : British Dermatological Nursing Group

www.bssa.uk.net : British Sjögren’s Syndrome Association

https://adolescent-rheumatology.uk : UCLH Centre for Adolescent Rheumatology

www.ghic.world : The Graham Hughes International Charity (GHIC)

www.lupus.org.uk : Lupus Trust

www.londonlupuscentre.co.uk : London Lupus Centre, London Bridge Hospital

www.nras.org.uk : National Rheumatoid Arthritis Society (NRAS)

www.thelupussite.com : A guide for lupus patients and their families

https://hiddendisabilitiesstore.com : Hidden Disabilities Sunflower scheme

www.sruk.co.uk : Scleroderma & Raynaud’s UK

www.rairda.org : Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA)

www.vitiligosupport.org.uk : Vitiligo Support UK

GENERAL USEFUL LINKS

www.bbc.co.uk/health :: BBC Health pages

www.benefitsandwork.co.uk :: Get the benefits you’re entitled to

www.benefitsguide.co.uk :: a free to use resource providing clear and comprehensive information on all available UK welfare benefits as well as guidance on applications, appeals, emergency assistance & legal help.

www.britishpainsociety.org :: Providing general information about all aspects of pain

www.careopinion.org.uk/  – Care Opinion is a place where you can share your experience of health or care services, and help make them better for everyone.

www.changingfaces.org.uk :: Support for people with disfigurements of the face and body

www.direct.gov.uk/en/DisabledPeople/index.htm :: Information & advice on all aspects of disability

www.gmc-uk.org/guidance/patients :: What to expect from your doctor: a guide for patients

www.health-friends.org :: Health Social Network

www.healthline.com/health/lupus/effects-on-body :: A body map and accompanying description of symptoms in lupus

www.healthwatch.co.uk :: Healthwatch England is the independent consumer champion for health and social care in England

www.medicalconditionsatschool.org.uk :: Health Conditions in School Alliance

www.medicines.org.uk/emc :: Summaries of Product Characteristics (known as SPCs or SmPCs)
Patient Information Leaflets (known as PILs, Package Leaflets or PLs)

www.mylupusteam.com :: The social network for those living with lupus

www.nationalvoices.org.uk :: An organisation that brings the voices of patients, service users and carers to bear on national health and social care policy in England

www.nhs.uk/carersdirect :: Information, advice and support for carers

www.nhs.uk/conditions/Lupus/Pages/Introduction.aspx :: NHS Choices Health A-Z

www.nutritionist-resource.org.uk :: Nutrition support network

www.ombudsman.org.uk :: Parliamentary and Health Service Ombudsman

www.painconcern.org.uk :: Registered charity offering information and support for people who live with pain and those who care for and about them

www.painuk.org :: Pain UK – an alliance of charities providing a voice for those in pain

www.patient.info :: Patient – Trusted medical advice

www.patientopinion.org.uk :: Patient Opinion

www.scope.org.uk :: Providing free, independent and impartial information and support on the issues that matter to disabled people and their families

www.sleepcouncil.org.uk :: The Sleep Council (Helping you get a better night’s sleep)

www.theadvocacypeople.org.uk/:: Provides advocacy support to anybody with health concerns or complaints.

www.turn2us.org.uk :: Help people access the money available to them – through benefits, grants and other financial help.