Clicking fingers

Is clicking fingers normal?

Steroid withdraw

I have reduced my steroids and now I am not on it since beginning of march. I feel nauseous and the other day I was rushing around for a meeting and was feeling nauseous and sweating. I was like retching as well - is that anxiety? My eyes feel tired and sore and my appetite has changed - don't feel like eating as I feel sick? What do you think it i

Mepacrine - flaring now on different brand

chilblain lupus?

I have had secondary Raynaud’s for years, but recently it has become worse and my feet are either freezing cold or burning hot. In addition the soles are sore and red in places, such that it is painful to walk. A trip around Google suggested chilblain lupus which I’d not heard of before. Obviously I try to keep my feet as warm as possible but it d

Tooth loss and Lupus

I need advice please. I have Lupus with Sjögren’s overlap. For about 2 weeks I have had extreme sensitivity when biting with my front teeth. At the same time my lupus symptoms worsened, lots more pain in bones and muscles so I thought the teeth sensitivity was part of it. Yesterday I was eating a basic salad and suddenly I could feel something hard

any advice 💜

my mum had seronegative lupus by the time she was diagnosed it was too late and we sadly lost her in June 2019 , after having Covid in 2020 I started showing signs of lupus or what I knew to be lupus , my ana is also negative the same as my mum so I’ve been diagnosed with fibromyalgia instead but I don’t know what else I can do anymore I’m in pain

Zentiva supply issues?

Hiya. Is anyone experiencing problems with getting hold of Zentiva Hydroxy? My usual pharmacy says their supply chain can't get hold of them and that is the same for a lot of the pharmacies in the area because of a change to the ordering system. I don't know then how we are supposed to get hold of the medication we need? Apparently it is

welfare cuts your help

hi can we all try help scope get the number they need for petition here is the link for you https://campaigns.scope.org.uk/page/165719/petition/1?locale=en-GB 🙏🫶🏻

Dies Azathioprine affect diagnosis?

Hi, I’ve been referred to a rheumatologist for possible lupus. I already have autoimmune liver diseases. I was on azathioprine for years but my hepatologist wanted to see if I could come off it and remain in remission. I couldn’t and my symptoms got worse including a lot of lupus symptoms - hence the referral to a rheumatologist. My question is: if

tendon problems?

Hi everyone, I have a question. I am UCTD with anti Ku antibodies. Does that make me prone to tendon/soft tissue injuries ? I seem to have a LOT of issues with this although I'm 67 and quite active considering. It takes ages to heal up. the latest problem is spine pain and lumbar pain which won't resolve (now 10 weeks). xray and ultrasound wer