by Debbie | May 6, 2025 | Latest News
A new report has been published evaluating lupus care in Wales, using information from people living with lupus and healthcare professionals. The report found some strengths of how care for lupus is delivered, and some areas which could be improved. The findings and...
by Debbie | Mar 3, 2025 | Latest News
A research team from Cambridge University has found that having a psychosomatic misdiagnosis (a misdiagnosis of a condition where physical symptoms are caused or worsened by psychological factors) before getting an autoimmune diagnosis can have a long-term impact on a...
by Debbie | Nov 14, 2024 | Latest News
What does good care and treatment for rare diseases mean to you? The Rare Disease Quality Statement Project is asking the rare disease community to complete their survey, to develop a set of statements which clearly set out what high-quality, sustainable care,...
by Debbie | Nov 8, 2024 | Latest News
Chimeric Antigen Receptor T-cell therapy (CAR-T) has previously shown positive results in treating blood cancers. Based on how this treatment works, efforts have turned towards exploring their potential in treating autoimmune diseases like lupus. What is CAR-T cell...
by Debbie | Oct 15, 2024 | Latest News
The NHS Autumn 2024 COVID-19 booster vaccination scheme is starting across England, Scotland, Wales and Northern Ireland. Eligible individuals will be able to get a booster vaccination at GP surgeries, some pharmacies and vaccination centres. If in England, you can...
