About LUPUS UK
LUPUS UK was founded in November 1990, becoming a registered charity in December 1995. Prior to becoming LUPUS UK, the organisation was known as the British SLE Aid Group (BSLEAG), founded by Cheryl Marcus in 1978.
about lupus uk
You can read more about the history of LUPUS UK in a retrospective written for the charity’s Silver Jubilee.
about lupus uk
A further retrospective was written for the charity’s 30th anniversary in 2020.
USEFUL LINKS
If you would like to read the LUPUS UK constitution, please click below:
For access to our 2021 annual reports, please click on the link below:
For access to our 2022 annual reports, please click on the link below:
For access to our 2023 annual reports, please click on the link below:
Who We Are
The Trustees
Managing the charity’s finances and ensuring LUPUS UK operates within the requirements of UK charity law. The Trustees govern the charity and meet four times in each year.
National Council
LUPUS UK’s National Council includes representatives from each of the Regional Support Groups. They help to share important information to local members and contribute to LUPUS UK’s planned activities through bi-annual meetings.
Medical Advisory Panel
LUPUS UK has appointed twelve prominent lupus specialists to advise on medical issues and on occasion to give expert opinion on grant applications which by their very nature are often scientific and complex. The twelve specialists cover a wide range of experience in lupus and allied conditions, and between them form an important part of the charity’s strengths.
Who We Are
The National Office
Caroline Olshewsky
CHIEF EXECUTIVE
Chris Maker
FINANCE MANAGER
Janine Hirsch
FUNDRAISING MANAGER
Alida Bennett
OFFICE MANAGER
Nakita Cambow
SOCIAL MEDIA & PROJECTS OFFICER
John Braybrook
MEMBERSHIP OFFICER
Judith Conners
TRUST FUNDRAISING OFFICER
Debbie Kinsey
HEALTH INFORMATION OFFICER
Stevie Burley
ADMINISTRATIVE ASSISTANT
Chelsea Wong
YOUNG PEOPLE & FAMILY SUPPORT OFFICER
The Trustees
LUPUS UK’s Board of Trustees is composed of up to twelve members, appointed for terms of up to three years. They have responsibility for the legal and financial oversight of the charity, meeting regularly with the Chief Executive to review the finances, set strategic direction and make funding decisions.
Living With Lupus
Manage Your Lupus
Eclipse Light Sensitivity
GP or Consultant Visits
Cost of Living Crisis
Benefits
Prescription Charges
Working with Lupus
Fatigue
Lupus Hairless and Wigs
Travel Insurance
Freedom Insurance
Life Insurance
Diet and Exercise
Lupus and Depression
Lupus In Young People
Family and Friends