OTHER UK ASSOCIATIONS/ORGANISATIONS

www.aps-support.org.uk : APS Support UK (for antiphospholipid syndrome/Hughes syndrome)

www.versusarthritis.org : The charity leading the fight against arthritis

www.arthritisnorth.com : Private Consulting Rooms, Belfast

www.bdng.org.uk : British Dermatological Nursing Group

www.bssa.uk.net : British Sjögren’s Syndrome Association

https://adolescent-rheumatology.uk : UCLH Centre for Adolescent Rheumatology

www.ghic.world : The Graham Hughes International Charity (GHIC)

www.lupus.org.uk : Lupus Trust

www.londonlupuscentre.co.uk : London Lupus Centre, London Bridge Hospital

www.nras.org.uk : National Rheumatoid Arthritis Society (NRAS)

www.thelupussite.com : A guide for lupus patients and their families

https://hiddendisabilitiesstore.com : Hidden Disabilities Sunflower scheme

www.sruk.co.uk : Scleroderma & Raynaud’s UK

www.rairda.org : Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA)

www.vitiligosupport.org.uk : Vitiligo Support UK

GENERAL USEFUL LINKS

www.aceinnovation.co.uk :: Suppliers of SuperVisor® designed specifically for isolated cases of light sensitivity related to office lighting environments

www.bbc.co.uk/health :: BBC Health pages

www.benefitsandwork.co.uk :: Get the benefits you’re entitled to

www.benefitsguide.co.uk :: a free to use resource providing clear and comprehensive information on all available UK welfare benefits as well as guidance on applications, appeals, emergency assistance & legal help.

www.britishpainsociety.org :: Providing general information about all aspects of pain

www.careopinion.org.uk/  – Care Opinion is a place where you can share your experience of health or care services, and help make them better for everyone.

www.changingfaces.org.uk :: Support for people with disfigurements of the face and body

www.coolcrutches.com :: Funky coloured crutches … not hospital grey!

www.counselling-directory.org.uk :: Connecting you with professional support

www.direct.gov.uk/en/DisabledPeople/index.htm :: Information & advice on all aspects of disability

www.drugwatch.com :: Keeping your medication safe

www.eatc4children.co.uk :: The UK’s first and only Experimental Arthritis Treatment Centre for Children

www.gmc-uk.org/guidance/patients :: What to expect from your doctor: a guide for patients

www.health-friends.org :: Health Social Network

www.healthline.com/health/lupus/effects-on-body :: A body map and accompanying description of symptoms in lupus

www.healthwatch.co.uk :: Healthwatch England is the independent consumer champion for health and social care in England

www.hypnotherapy-directory.org.uk :: Support network of UK hypnotherapists

www.ICEtags.co.uk :: ICEtags carry vital information about you to get the help you need, should you need it

www.insurancewith.com/travelling-with-a-medical-condition/ :: The essential guide to travelling with a medical condition

www.labtestsonline.org.uk/ :: Patient Education on Blood Tests

www.lifecoach-directory.org.uk :: Search for a life coach or NLP practitioner near you

www.medicalconditionsatschool.org.uk :: Health Conditions in School Alliance

www.medicalert.org.uk :: MedicAlert Foundation

www.medicines.org.uk/emc :: Summaries of Product Characteristics (known as SPCs or SmPCs)
Patient Information Leaflets (known as PILs, Package Leaflets or PLs)

www.medipal.org.uk :: Medical ID Cards

www.mylupusteam.com :: The social network for those living with lupus

www.mytherapyapp.com :: A medication reminder app to help you keep track of your medications and stay on top of your health.

www.nationalvoices.org.uk :: An organisation that brings the voices of patients, service users and carers to bear on national health and social care policy in England

www.nhs.uk/carersdirect :: Information, advice and support for carers

www.nhs.uk/conditions/Lupus/Pages/Introduction.aspx :: NHS Choices Health A-Z

www.nutritionist-resource.org.uk :: Nutrition support network

www.ombudsman.org.uk :: Parliamentary and Health Service Ombudsman

www.oralieve-direct.co.uk :: Oralieve Dry Mouth Relief

www.painconcern.org.uk :: Registered charity offering information and support for people who live with pain and those who care for and about them

www.painuk.org :: Pain UK – an alliance of charities providing a voice for those in pain

www.patient.info :: Patient – Trusted medical advice

www.patientopinion.org.uk :: Patient Opinion

www.pmrgcauk.com :: Polymyalgia Rheumatica and Giant Cell Arteritis UK
Offers support, raises awareness and encourages research into the two illnesses.

www.scope.org.uk :: Providing free, independent and impartial information and support on the issues that matter to disabled people and their families

www.stairliftadvisor.co.uk :: Offers consumers impartial advice about stairlifts.

www.stairliftexperts.co.uk/the-definitive-guide-to-stairlift-grants :: Everything you need to know about applying for a stair lift grant

www.sleepcouncil.org.uk :: The Sleep Council (Helping you get a better night’s sleep)

www.sunsibility.co.uk :: Sunsibility – UV protective clothing

www.riseabove.org.uk :: The Rise Above website aims to build emotional resilience in individuals aged 11 to 16 by equipping them with the skills and knowledge they need to make informed decisions, and help deal with the pressures of growing up.

www.rscpp.co.uk :: a Therapist Directory listing over 2000 Therapists nationwide all of which are accredited/chartered or registered and belong to a professional body.

www.theadvocacypeople.org.uk/:: Provides advocacy support to anybody with health concerns or complaints.

www.thepillowfort.co.uk :: Online magazine, blog and support group aimed at young people with chronic illnesses.

www.therapy-directory.org.uk :: Search for a professional therapist near you

www.turn2us.org.uk :: Help people access the money available to them – through benefits, grants and other financial help.

www.UmbrellaHeaven.com :: Silver UV Protective Umbrellas

www.withoutwings.weebly.com :: Without Wings: The Manx charity specifically for people living on the Isle of Man living with Autoimmune Arthritis

TRAVEL INSURANCE COMPANIES

www.able2travel.com :: able2travel Insurance Specialists

www.allcleartravel.co.uk :: AllClear Travel Insurance

www.free-spirit.com :: Free Spirit Travel Insurance

www.gotravelinsurance.co.uk :: Go Travel Insurance

www.insurancechoice.co.uk :: Insurance Choice
(LUPUS UK receives a donation from each policy sold by Insurance Choice)

www.the-insurance-surgery.co.uk/?ref=tis854 :: The Insurance Surgery
(LUPUS UK receives a donation from each policy sold by The Insurance Surgery)

www.itssoeasytravelinsurance.com :: It’s so Easy Travel Insurance

www.justtravelcover.com :: JustTravelcover
(LUPUS UK receives a donation from each policy sold by JustTravelcover)

www.orbisinsurance.co.uk :: Orbis Insurance Services

www.staysure.co.uk :: Staysure – over 50s experts