Useful Links
Useful Links
OTHER UK ASSOCIATIONS/ORGANISATIONS
www.aps-support.org.uk : APS Support UK (for antiphospholipid syndrome/Hughes syndrome)
www.versusarthritis.org : The charity leading the fight against arthritis
www.arthritisnorth.com : Private Consulting Rooms, Belfast
www.bdng.org.uk : British Dermatological Nursing Group
www.bssa.uk.net : British Sjögren’s Syndrome Association
https://adolescent-rheumatology.uk : UCLH Centre for Adolescent Rheumatology
www.ghic.world : The Graham Hughes International Charity (GHIC)
www.lupus.org.uk : Lupus Trust
www.londonlupuscentre.co.uk : London Lupus Centre, London Bridge Hospital
www.nras.org.uk : National Rheumatoid Arthritis Society (NRAS)
www.thelupussite.com : A guide for lupus patients and their families
https://hiddendisabilitiesstore.com : Hidden Disabilities Sunflower scheme
www.sruk.co.uk : Scleroderma & Raynaud’s UK
www.rairda.org : Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA)
www.vitiligosupport.org.uk : Vitiligo Support UK
GENERAL USEFUL LINKS
www.aceinnovation.co.uk :: Suppliers of SuperVisor® designed specifically for isolated cases of light sensitivity related to office lighting environments
www.bbc.co.uk/health :: BBC Health pages
www.benefitsandwork.co.uk :: Get the benefits you’re entitled to
www.benefitsguide.co.uk :: a free to use resource providing clear and comprehensive information on all available UK welfare benefits as well as guidance on applications, appeals, emergency assistance & legal help.
www.britishpainsociety.org :: Providing general information about all aspects of pain
www.careopinion.org.uk/ – Care Opinion is a place where you can share your experience of health or care services, and help make them better for everyone.
www.changingfaces.org.uk :: Support for people with disfigurements of the face and body
www.coolcrutches.com :: Funky coloured crutches … not hospital grey!
www.counselling-directory.org.uk :: Connecting you with professional support
www.direct.gov.uk/en/DisabledPeople/index.htm :: Information & advice on all aspects of disability
www.drugwatch.com :: Keeping your medication safe
www.eatc4children.co.uk :: The UK’s first and only Experimental Arthritis Treatment Centre for Children
www.gmc-uk.org/guidance/patients :: What to expect from your doctor: a guide for patients
www.health-friends.org :: Health Social Network
www.healthline.com/health/lupus/effects-on-body :: A body map and accompanying description of symptoms in lupus
www.healthwatch.co.uk :: Healthwatch England is the independent consumer champion for health and social care in England
www.hypnotherapy-directory.org.uk :: Support network of UK hypnotherapists
www.ICEtags.co.uk :: ICEtags carry vital information about you to get the help you need, should you need it
www.insurancewith.com/travelling-with-a-medical-condition/ :: The essential guide to travelling with a medical condition
www.labtestsonline.org.uk/ :: Patient Education on Blood Tests
www.lifecoach-directory.org.uk :: Search for a life coach or NLP practitioner near you
www.medicalconditionsatschool.org.uk :: Health Conditions in School Alliance
www.medicalert.org.uk :: MedicAlert Foundation
www.medicines.org.uk/emc :: Summaries of Product Characteristics (known as SPCs or SmPCs)
Patient Information Leaflets (known as PILs, Package Leaflets or PLs)
www.medipal.org.uk :: Medical ID Cards
www.mylupusteam.com :: The social network for those living with lupus
www.mytherapyapp.com :: A medication reminder app to help you keep track of your medications and stay on top of your health.
www.nationalvoices.org.uk :: An organisation that brings the voices of patients, service users and carers to bear on national health and social care policy in England
www.nhs.uk/carersdirect :: Information, advice and support for carers
www.nhs.uk/conditions/Lupus/Pages/Introduction.aspx :: NHS Choices Health A-Z
www.nutritionist-resource.org.uk :: Nutrition support network
www.ombudsman.org.uk :: Parliamentary and Health Service Ombudsman
www.oralieve-direct.co.uk :: Oralieve Dry Mouth Relief
www.painconcern.org.uk :: Registered charity offering information and support for people who live with pain and those who care for and about them
www.painuk.org :: Pain UK – an alliance of charities providing a voice for those in pain
www.patient.info :: Patient – Trusted medical advice
www.patientopinion.org.uk :: Patient Opinion
www.pmrgcauk.com :: Polymyalgia Rheumatica and Giant Cell Arteritis UK
Offers support, raises awareness and encourages research into the two illnesses.
www.scope.org.uk :: Providing free, independent and impartial information and support on the issues that matter to disabled people and their families
www.stairliftadvisor.co.uk :: Offers consumers impartial advice about stairlifts.
www.stairliftexperts.co.uk/the-definitive-guide-to-stairlift-grants :: Everything you need to know about applying for a stair lift grant
www.sleepcouncil.org.uk :: The Sleep Council (Helping you get a better night’s sleep)
www.sunsibility.co.uk :: Sunsibility – UV protective clothing
www.riseabove.org.uk :: The Rise Above website aims to build emotional resilience in individuals aged 11 to 16 by equipping them with the skills and knowledge they need to make informed decisions, and help deal with the pressures of growing up.
www.rscpp.co.uk :: a Therapist Directory listing over 2000 Therapists nationwide all of which are accredited/chartered or registered and belong to a professional body.
www.theadvocacypeople.org.uk/:: Provides advocacy support to anybody with health concerns or complaints.
www.thepillowfort.co.uk :: Online magazine, blog and support group aimed at young people with chronic illnesses.
www.therapy-directory.org.uk :: Search for a professional therapist near you
www.turn2us.org.uk :: Help people access the money available to them – through benefits, grants and other financial help.
www.UmbrellaHeaven.com :: Silver UV Protective Umbrellas
www.withoutwings.weebly.com :: Without Wings: The Manx charity specifically for people living on the Isle of Man living with Autoimmune Arthritis
TRAVEL INSURANCE COMPANIES
www.able2travel.com :: able2travel Insurance Specialists
www.allcleartravel.co.uk :: AllClear Travel Insurance
www.free-spirit.com :: Free Spirit Travel Insurance
www.gotravelinsurance.co.uk :: Go Travel Insurance
www.insurancechoice.co.uk :: Insurance Choice
(LUPUS UK receives a donation from each policy sold by Insurance Choice)
www.the-insurance-surgery.co.uk/?ref=tis854 :: The Insurance Surgery
(LUPUS UK receives a donation from each policy sold by The Insurance Surgery)
www.itssoeasytravelinsurance.com :: It’s so Easy Travel Insurance
www.justtravelcover.com :: JustTravelcover
(LUPUS UK receives a donation from each policy sold by JustTravelcover)
www.orbisinsurance.co.uk :: Orbis Insurance Services
www.staysure.co.uk :: Staysure – over 50s experts
Living With Lupus
Manage Your Lupus
Eclipse Light Sensitivity
GP or Consultant Visits
Cost of Living Crisis
Benefits
Prescription Charges
Working with Lupus
Fatigue
Lupus Hairless and Wigs
Travel Insurance
Freedom Insurance
Life Insurance
Diet and Exercise
Lupus and Depression
Lupus In Young People
Family and Friends