Shelagh Cheesman Memorial Lupus Day – 16th March 2024

Shelagh Cheesman Memorial Lupus Day – 16th March 2024

On Saturday 16th March 2024, Cambridgeshire Lupus Group will be hosting the Shelagh Cheesman Memorial Lupus Information Day.

It was with great sadness that Shelagh Cheesman died as a result of cancer in March 2018. Shelagh was a much loved, admired, inspirational person who touched a great many lives. She was a key Cambridgeshire Lupus Group Committee member helping everyone affected by lupus whilst living with it herself. 

 

The Venue
This event will be at The Hinxton Hall Conference Centre, Wellcome Genome Campus, Hinxton, Cambridge CB10 1RQ.

     

Registration for the information day starts from 12.30pm, with the event itself starting at 1.20pm. The event will finish no later than 5pm.

 

Our Line-Up of Speakers:

Dr Frances Hall (Consultant Rheumatologist at Addenbrooke’s Hospital)
Topic: TBC

Dr Frances Hall studied Medicine and, later, gained a DPhil at Oxford University. She was a postdoctoral fellow at Stanford University in California in 1997-2000. She is currently a Consultant Rheumatologist at Addenbrooke’s Hospital in Cambridge with a subspecialist interest in Connective Tissue Disease. Dr Hall is the Chair of the Eastern Network for Rare Autoimmune Diseases, Chair of the East Anglian Rheumatology Society and represents Midlands and East on the Specialised Rheumatology Clinical Reference Group. She is also a Fellow of Sidney Sussex College.

 

Dr Melanie Sloan (Research Associate at the Department of Public Health, University of Cambridge)
Topic: TBC

Melanie has been a researcher at the Department of Public Health for 14 years, following an earlier career as an RAF officer. She is currently funded by LUPUS UK and The Lupus Trust on several research studies. Her PhD was entitled “The impact of patient-clinician interactions on patients with systemic autoimmune rheumatic diseases”. She is passionate about equality and consistency of care for all, with her research fully involving patients as equal collaborators. Her research has generated significant media interest, with one study reported on the front page of The Times. Her research has been described by patients as “life-changing”, particularly in highlighting that they are not alone in experiencing these symptoms and medical experiences.

 

Jane Robinson
Topic: TBC

Jane Robinson was diagnosed with lupus in 1994 despite having symptoms for 15 years prior. Her diagnosis came after a referral to immunology at Addenbrooke’s Hospital. After a lot of tests, the SLE criteria were reviewed, which confirmed positive ANA antibodies. Jane was told she “Had SLE and needed to see a rheumatologist”. At this time, Jane was told about LUPUS UK which had only recently formed. As a public health professional, Jane knows how critical it is to have the right information at hand, so it has become a passion of hers to help other people not be as scared as she was that day back in 1994! Jane has been involved with LUPUS UK since, initially helping with the newsletter for the Cambridgeshire Group and a stint as Group Chair before she became a LUPUS UK Trustee for five years. She has been helping to run the Peterborough Coffee & Chat group for nearly 20 years.

 

Sara Miller (Lupus Specialist Nurse, Addenbrooke’s Hospital)
Topic: The use of vitamin D with Lupus

Sara has worked as a nurse at Addenbrookes for 20 years, originally in neurology/neurosurgery and for the last six months she has taken over from Jane Hollis as a Lupus Nurse. This involves working with both the Vasculitis and Rheumatology teams. Sara holds clinics both face-to-face and telephone involving general reviews, medication and lifestyle education.

 

Paul Howard (Chief Executive of LUPUS UK)
Topic: TBC

Paul initially joined LUPUS UK as a volunteer in spring 2011, helping the charity get a foothold on social media and improve its online presence. In October 2011 he joined the staff team in the role of Projects Officer. Paul has worked at the charity ever since, taking on the role of Chief Executive in March 2020. Paul will be leaving LUPUS UK at the end of March 2024. 

 

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