Background

Systemic Lupus Erythematosus (SLE) can impact people in different ways, including whether and how it affects what people are or are not able to do. It’s important to understand how lupus can affect people differently, so that researchers and healthcare professionals can find ways of meeting the needs of all people with SLE when they are designing programmes to help improve people’s lives.

What is this research about?

This study is doing a survey of people with SLE to find out more about their health and lifestyle, so the researchers can understand how SLE affects different people’s lives. They want to use this information to improve the day-to-day lives of people with SLE in ways that takes account of the differences in people’s experiences and needs.

The study is being run by a research team in Birmingham. It is funded by LUPUS UK so we’re excited to see it get started.

What will happen if I take part?

If you take part, you will answer an online survey with questions about how your lupus affects you, the physical activity you do, and your wellbeing. It will take about 25 minutes to complete. Most questions in the survey are optional so you don’t have to answer anything you don’t want to, and all the data is collected anonymously.

Who can take part?

Anyone can take part in the study if they:

• Have a diagnosis of lupus
• Are over the age of 18
• Currently live in the UK

 

How do I find out more?

If you have any questions, you can email the researchers on EXCEL-research@contacts.bham.ac.uk

If you would like to take part, you can find out more information, sign up, and complete the survey at http://bham.onlinesurveys.ac.uk/lifestyle-sle