Help us update our “Lupus and the Skin” information booklet

Help us update our “Lupus and the Skin” information booklet

Cover of the current "Lupus and the Skin" booklet, which has a picture of a white woman with a red butterfly rash

Our current “Lupus and the Skin” booklet

Thanks to some funding from the British Association of Dermatologists, this summer we are updating our “Lupus and the Skin” booklet to ensure it includes the latest information and is more accessible and inclusive.

We want to hear from you about what you would like to see in an updated booklet.

We record all feedback we get about our publications, and use this to help us improve them when we update them. But we know that not everyone emails or calls us about what they think, and it’s important we find out what people would find most helpful so it can meet the needs of as many people as possible. We’re interested in what you think about the information in the booklet, if there’s information missing, how easy it is to use, and how the booklet looks and feels.

There are two ways to give us your thoughts on our existing Lupus and the Skin booklet:

1). Complete our short survey with prompt questions to help you think about different elements of the booklet. All questions are optional and your answers will be anonymous. You can find the survey HERE

2). Contact Debbie Kinsey on or 01708 731251 to give her any thoughts or feedback you have – this can be as long or as short as you would like!

If you don’t already have a copy, you can download our existing booklet from our website hereOr contact Debbie and she can send you a copy in the post.

The deadline for giving us your thoughts is 14th August 2023. We will then look at all the feedback as well as what the latest medical updates are, and work with our specialist medical advisors and a small group of people with lupus to make any changes or additions. We won’t be able to make every change that everyone suggests, but we will take all the feedback into consideration and write an article for the website explaining how we used what you told us.

The new booklet will be ready to download and send to anyone affected by lupus, healthcare clinics, and information stands, free of charge, by the end of October 2023.

Thank you for taking the time to share your thoughts with us.


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