The UK Covid-19 inquiry wants you to share your experience of the pandemic in order to properly understand its impact.

The pandemic has affected, and continues to affect, everyone in the UK, and has had an especially big impact on communities like ours. This is your opportunity to share the impact it had on you personally. Your story can help to inform the Inquiry’s investigations and give you the chance to share what you think could be learned, what could have been done better or differently, or if something was done well.

Your experience matters.

What is the UK Covid-19 Inquiry?

The UK Covid-19 Inquiry is a public inquiry set up to examine the UK’s response to and the impact of the pandemic. As part of the inquiry, they are inviting the public to share their experiences through “Every Story Matters”.

Why should I share my experience with the Inquiry?

The Inquiry wants to hear from as many people as possible, from different communities across the UK. Your individual experience is valuable, more so than you might think, as it will help the Inquiry to understand the impact of the pandemic on communities like ours. Every story and experience is valuable in shaping the Inquiry’s recommendations for the future. Help them to hear the voices of people with lupus and their friends and loved ones.

How can I share my experience?

The Inquiry wants to understand every aspect of the pandemic so you can share as much or as little as you want to about your life, your work, your community, your family, or your wellbeing.

You can use the short online form on the Every Story Matters website. You can also request the form in other formats including paper, easy read, braille, and in other languages by emailing contact@covid19.public-inquiry.co.uk or writing to FREEPOST, UK Covid-19 Public Inquiry.

 

What happens after I’ve shared my experience?

Everyone’s stories will be brought together and turned into themed reports, which will then be used as evidence in the investigation. The reports will be made anonymous, which means any information which may identify you, such as names or places, will be removed from the final reports.

 

It’s been difficult to write or talk about my experiences, where can I find support?

It can be difficult to think about the things you have been through or continue to go through in the pandemic. The Every Story Matters campaign has a list of support organisations HERE, including helplines, mental health support, financial support, and bereavement support, among others.

If you would like support from LUPUS UK, you can reach us on our helpline (01708 731251) or via email (HeadOffice@lupusUK.org.uk).