Useful Links

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Useful Links

LUPUS UK Regional Groups

www.lupusuk.org.uk :: LUPUS UK

www.cambridgeshirelupus.org.uk :: Cambridgeshire Lupus Group

www.devonandcornwalllupus.org.uk :: Devon and Cornwall Lupus Group

www.dorsetlupus.com :: Dorset Lupus Group

www.emlupus.co.uk :: East Midlands Lupus Group

www.grampianlupusgroup.co.uk :: Grampian Lupus Group

www.kentlupusgroup.org.uk :: Kent Lupus Group

www.northwestlupus.org.uk :: North West Lupus Group

www.norfolklupusgroup.co.uk :: Norfolk Lupus Group

www.northeastlupus.org.uk :: North East Lupus Group

www.northantslupusgroup.org.uk:: Northamptonshire Lupus Group

www.southwaleslupus.btik.com :: South Wales Lupus Group

www.strathclydelupusgroup.org.uk :: Strathclyde Lupus Group

www.suffolklupusgroup.org :: Suffolk Lupus Group

www.thamesvalleylupus.org.uk :: Thames Valley Lupus Group

www.westernlupus.org.uk :: Western Lupus Group

www.westmidlandslupus.co.uk :: West Midlands Lupus Group

www.yorkshirelupus.org.uk :: Yorkshire Lupus Group

Other UK Associations/Organisations

www.anticoagulation.org.uk :: University of Birmingham Anticoagulation site

www.arthritisresearchuk.org :: The charity leading the fight against arthritis

www.arthritiscare.org.uk :: Arthritis Care

www.arthritisnorth.com :: Private Consulting Rooms, Belfast

www.arthritisresearchuk.org :: formerly Arthritis Research Campaign (arc)

www.bdng.org.uk :: British Dermatological Nursing Group

www.bssa.uk.net :: British Sjögren's Syndrome Association

www.caithnesslupus.btik.com :: Caithness Lupus Support Group

www.hughes-syndrome.org :: Hughes Syndrome Foundation

www.lupus.org.uk :: St Thomas' Lupus Trust

www.londonlupuscentre.co.uk :: London Lupus Centre, London Bridge Hospital

www.rheumatoid.org.uk :: National Rheumatoid Arthritis Society (NRAS)

www.uklupus.co.uk :: A guide for lupus patients and their families

Overseas Associations/Organisations

www.anticoagulationeurope.org :: AntiCoagulation Europe

www.arthritis.org :: Arthritis Foundation of America

www.cure4lupus.org:: SLE - Lupus Awareness, Information, Products and Merchandise

www.ilar.org :: International League of Associations for Rheumatology (ILAR)

www.lupusalliance.org :: Lupus Alliance of America

www.lupuscanada.org :: Lupus Canada

www.lupus-europe.org :: Lupus Europe (formerly ELEF)

www.lupusinternational.com :: Lupus International

www.lupus.org :: Lupus Foundation of America

www.rheumatology.org :: American College of Rheumatology

General Useful Links

www.bbc.co.uk/health :: BBC Health pages

www.beautyresource.org.uk/articles/skin-camouflage.html :: Find beauty professional dealing with Skin Camouflage

www.benefitsandwork.co.uk :: Get the benefits you're entitled to

www.britishpainsociety.org :: Providing general information about all aspects of pain

www.changingfaces.or.uk :: Support for people with disfigurements of the face and body

www.charitychristmascards.com/charitychoice :: Personalised Charity Christmas Cards

www.coolcrutches.com :: Funky coloured crutches ... not hospital grey!

www.counselling-directory.org.uk :: Connecting you with professional support

www.direct.gov.uk/en/DisabledPeople/index.htm :: Information & advice on all aspects of disability

www.drugwatch.com :: Keeping your medication safe

www.equip.nhs.uk :: NHS website which signposts members of the public to useful health and social care websites

www.expertpatients.co.uk :: Self Management Courses for those with long term health conditions

www.gmc-uk.org/guidance/patients :: What to expect from your doctor: a guide for patients

www.healthinfocentre.org :: Fibromyalgia Association UK

www.healthwatch.co.uk :: Healthwatch England is the independent consumer champion for health and social care in England

www.hypnotherapy-directory.org.uk :: Support network of UK hypnotherapists

www.ICEtags.co.uk :: ICEtags carry vital information about you to get the help you need, should you need it

www.medicalert.org.uk :: MedicAlert Foundation

www.medicines.org.uk/emc :: Summaries of Product Characteristics (known as SPCs or SmPCs)
Patient Information Leaflets (known as PILs, Package Leaflets or PLs)

www.medipal.org.uk :: Medical ID Cards

www.nhs.uk/carersdirect :: Information, advice and support for carers

www.nhs.uk/conditions/Lupus/Pages/Introduction.aspx :: NHS Choices Health A-Z

www.nhs.uk/Video/Pages/lupus-in-children.aspx?searchterm=Skin_hair_nails&searchtype=Tag :: NHS Choices Lupus in children video

www.nutritionist-resource.org.uk :: Nutrition support network

www.ombudsman.org.uk :: Parliamentary and Health Service Ombudsman

www.painconcern.org.uk :: Registered charity offering information and support for people who live with pain and those who care for and about them

www.patient.co.uk :: Health information as provided by GPs to patients

www.patientopinion.org.uk :: Patient Opinion

www.patients-association.com :: Listening to patients. Speaking up for change.

www.pmrgcauk.com :: Polymyalgia Rheumatica and Giant Cell Arteritis UK
Offers support, raises awareness and encourages research into the two illnesses.

www.stairliftadvisor.co.uk :: Offers consumers impartial advice about stairlifts.

www.skin-camouflage.net :: British Association of Skin Camouflage

www.suninsight.com :: Suninsight Limited - UV sun protection products

www.sunsibility.co.uk :: Sunsibility - UV protective clothing

www.therapy-directory.org.uk :: Search for a professional therapist near you

www.turn2us.org.uk :: Help people access the money available to them – through benefits, grants and other financial help.

www.UmbrellaHeaven.com :: Silver UV Protective Umbrellas

www.webmd.boots.com/a-to-z-guides/ss/slideshow-lupus-overview :: Boots Web MD

Travel Insurance companies

www.able2travel.com :: able2travel Insurance Specialists

www.allcleartravel.co.uk :: AllClear Travel Insurance

www.freedominsure.co.uk :: Freedom Travel Insurance